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The information in these webinars should not be construed as medical advice. Please consult with your health care provider regarding your medical decisions and treatment. The listed resources are not intended to be endorsements.
October 9, 2024
This 1.5 hour free annual webinar will focus on providing the tools you need to take ownership of your health and survivorship journey post allogeneic transplant. What should YOU be asking YOUR doctor? Dr. Minoo Battiwalla, MD, MS, Director of Outcomes Research, Sarah Cannon Transplant and Cell Therapy Network will break it down; what is important to look out for—such as infections, cGVHD, risk of relapse and why an individual long term follow up survivorship plan is key. Additionally, Meagan Jourdan-Brown, LCSW, CLL-E, of The CAREPort, LLC will tackle the many psychosocial considerations, focusing on how to get the help you need, manage anxiety and fatigue and maximize your quality of life. Survivor Beth Ades, of Iowa will share her transplant story and inspire you to get through it and get on with life.
January 24, 2024
Grief and planning for end of life care are some of the most difficult parts of a patient or caregivers experience with AML. In this virtual event, hosted by HealthTree for AML and the National Bone Marrow Transplant Link, we bring together 3 individuals uniquely qualified to help our AML community navigate this sensitive topic. We will hear personal stories, learn strategies for coping with difficult emotions, and share resources for those in this part of their journey with AML.
This webinar will discuss sensitive topics that may be difficult for some patients or caregivers to hear.
December 6, 2023
Dr. Greg Yanik of the University of Michigan Health Rogel Cancer Center is a hematologist and blood and marrow transplant physician who treats patients with leukemia, lymphoma and other blood and bone marrow diseases. Dr. Yanik will outline the best ways to recognize, prevent, diagnose and treat this chronic rare disease, focusing on lung issues. As well, Lauren Saban, LMSW of Memorial Sloan Kettering Cancer Center will focus on the many psychosocial and emotional needs of all GVHD patients. Additionally, Becky Dame, a two-time transplant survivor of leukemia in Florida who lives with cGVHD is also an Information Specialist for The Leukemia & Lymphoma Society who will share her personal and professional perspective.
You don’t want to miss the Q & A if you have lung issues.
November 8, 2023
November 9, 2022
Dr. Stephanie Lee is a Professor at the Fred Hutchinson Cancer Center and the University of Washington, Seattle, WA. At Fred Hutchinson, Dr. Lee is the Associate Director of the Clinical Research Division and the Research Director of the Transplant Long-Term Follow-Up Program and will share her incredible expertise regarding many topics related to quality of life while experiencing cGVHD. Taisel Losada, PsyD, LP of Henry Ford Cancer Institute is a clinical psychologist specializing in the psychological, behavioral, and social factors that impact the cancer population and will cover ways to find emotional support, coping mechanisms and more. Additionally, Peter Gordon is a long-time survivor of AML who had a transplant in 2008. Peter chronicled his transplant and the challenging years afterward in his memoir “Six Years and Counting: Love, Leukemia, and the Long Road Onward” and will share how he is living his best life as he deals with chronic related conditions.
October 12, 2022
Abby Ciampa, NP, of the Dana Farber Cancer Institute will share her medical expertise regarding staying healthy in survivorship post-transplant, focusing on side effects such as cGVHD, fatigue and sexual dysfunction, health maintenance and disease surveillance. Regineak Ruffin, LMSW and Info Specialist of The Leukemia & Lymphoma Society will focus on depression, anxiety, thriving as you accept your new normal and advocating for yourself. Additionally, Todd Brown, a ten-year multiple myeloma survivor has had two autologous transplants and will share his incredible personal perspective.
January 27, 2022
Leora Ellen Comis, a senior staff occupational therapist in the Occupational Therapy section of the NIH Clinical Center will lead this webinar with an important focus on OT interventions that can improve the quality of life for GVHD patients. Sarah Henke, Clinical Research Dietitian of the NIH Clinical Center will review key nutrition factors that are important in GVHD and transplant patients. Jennifer Gillette, LMSW, of the nbmtLINK, will host our program and present on the emotional toll of GVHD, advice to better handle it and best tips from patients dealing with GVHD as a part of her presentation.
OCTOBER 27, 2021
Connie A. Sizemore, Pharm.D., Lead Clinical Pharmacy Specialist Transplant, Leukemia and Cellular Therapy Program at the Northside Hospital Cancer Institute will lead the discussion covering the increase of allogeneic transplants, the grading of cGVHD, growing risk factors, how the skin, eyes and lungs are affected and treatment options.
SEPTEMBER 21, 2021
Dr. Asif Alavi, Assistant Professor, Clinical, Hematology-Oncology, of the Barbara Ann Karmanos Cancer Center will share his professional expertise on clinical trials and why they are so important. Abbey Fueger, BA, BSN, RN is a Clinical Trial Nurse Navigator with the Clinical Trial Support Center of The Leukemia & Lymphoma Society and will help us better navigate clinical trials. This webinar will be facilitated by Jennifer Gillette, our licensed staff social worker. Additionally, Mike Ansley and Ray Gillespie, both survivors, will share their incredible personal life-saving experiences with multiple clinical trials, including cGVHD trials (Imbruvica and Rockstar) will be discussed.
OCTOBER 20, 2020
This webinar will tackle it all—fatigue, GVHD, chemo brain, depression, stress, anxiety, sleep issues, mood disorders, PTSD, mindfulness, nutrition, advocating for yourself and more. We’ll cover how COVID-19 has affected cancer care. Bone marrow/stem cell transplant survivorship clinics across the nation have worked hard to keep you safe. Our top notch speakers will guide you on how to continue to thrive during a pandemic. We’ll also hear from a survivor who is now one-year post-transplant. This webinar will be led by Jennifer Gillette, our licensed staff social worker.
SEPTEMBER 29, 2020
The intestinal microbiota plays an important role in the pathophysiology of a variety of diseases. Studies in mouse and man from the 1970s have indicated that changes in the gut flora are associated with overall outcome after allogeneic hematopoietic cell transplantation (allo-HCT), including overall survival, graft-versus-host disease, engraftment and infection. These changes are due to decreased or altered diet, conditioning regimens, antibiotics and other drugs. Dr. van den Brink will give practical advice and a serving of hope to so many suffering with GVHD. Peter Adintori, the Clinical Research Dietitian in Dr. van den Brink’s lab, will offer additional practical nutrition tips to support patients during their journey with GVHD. As well, our licensed staff social worker, Jennifer Gillette will offer comfort and guidance to all regarding the emotional havoc GVHD can sometimes bring.
SEPTEMBER 23, 2020
National Heart, Lung, and Blood Institute, in partnership with the National Bone Marrow Transplant Link (nbmtLINK) hosted a free webinar on sickle cell disease transplantation options. Leading researchers Drs. John Tisdale and Courtney Fitzhugh discussed haploidentical and allogeneic transplant efforts to offer curative therapies for patients with sickle cell disease. They were joined by one of their very own patient success stories.
OCTOBER 29, 2019
This webinar addresses the many issues that relate to survivorship including risks, treatments, bone health, cGVHD, steroids, secondary cancer, PTSD, meditation, mindfulness, healthy habits post-transplant and much more.
OCTOBER 17, 2019
This webinar is to help you and your loved ones better understand the complexities of Chronic Graft Versus Host Disease (cGVHD) as it relates to a bone marrow/stem cell transplant journey.
OCTOBER 9, 2018
Presenter: Monica Fawzy Bryant, Esq., COO, Triage Cancer
SEPTEMBER 26, 2018
Presenters: Dr. Annie Im, Lew Christie, Survivor and Jennifer Gillette, LMSW
SEPTEMBER 12, 2018
Presenter: Jennifer Gillette, LMSW
OCTOBER 10, 2017
Presenter: Michelle Bishop, PhD
OCTOBER 3, 2017
Presenter: Joanna Morales, Esq., Triage Cancer
SEPTEMBER 26, 2017
Presenter: Olivia Eusden, MSW, LICSW, Be The Match
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