The information in these webinars should not be construed as medical advice. Please consult with your health care provider regarding your medical decisions and treatment. The listed resources are not intended to be endorsements.
November 9, 2022
Dr. Stephanie Lee is a Professor at the Fred Hutchinson Cancer Center and the University of Washington, Seattle, WA. At Fred Hutchinson, Dr. Lee is the Associate Director of the Clinical Research Division and the Research Director of the Transplant Long-Term Follow-Up Program and will share her incredible expertise regarding many topics related to quality of life while experiencing cGVHD. Taisel Losada, PsyD, LP of Henry Ford Cancer Institute is a clinical psychologist specializing in the psychological, behavioral, and social factors that impact the cancer population and will cover ways to find emotional support, coping mechanisms and more. Additionally, Peter Gordon is a long-time survivor of AML who had a transplant in 2008. Peter chronicled his transplant and the challenging years afterward in his memoir “Six Years and Counting: Love, Leukemia, and the Long Road Onward” and will share how he is living his best life as he deals with chronic related conditions.
October 12, 2022
Abby Ciampa, NP, of the Dana Farber Cancer Institute will share her medical expertise regarding staying healthy in survivorship post-transplant, focusing on side effects such as cGVHD, fatigue and sexual dysfunction, health maintenance and disease surveillance. Regineak Ruffin, LMSW and Info Specialist of The Leukemia & Lymphoma Society will focus on depression, anxiety, thriving as you accept your new normal and advocating for yourself. Additionally, Todd Brown, a ten-year multiple myeloma survivor has had two autologous transplants and will share his incredible personal perspective.
January 27, 2022
Leora Ellen Comis, a senior staff occupational therapist in the Occupational Therapy section of the NIH Clinical Center will lead this webinar with an important focus on OT interventions that can improve the quality of life for GVHD patients. Sarah Henke, Clinical Research Dietitian of the NIH Clinical Center will review key nutrition factors that are important in GVHD and transplant patients. Jennifer Gillette, LMSW, of the nbmtLINK, will host our program and present on the emotional toll of GVHD, advice to better handle it and best tips from patients dealing with GVHD as a part of her presentation.
OCTOBER 27, 2021
Connie A. Sizemore, Pharm.D., Lead Clinical Pharmacy Specialist Transplant, Leukemia and Cellular Therapy Program at the Northside Hospital Cancer Institute will lead the discussion covering the increase of allogeneic transplants, the grading of cGVHD, growing risk factors, how the skin, eyes and lungs are affected and treatment options.
SEPTEMBER 21, 2021
Dr. Asif Alavi, Assistant Professor, Clinical, Hematology-Oncology, of the Barbara Ann Karmanos Cancer Center will share his professional expertise on clinical trials and why they are so important. Abbey Fueger, BA, BSN, RN is a Clinical Trial Nurse Navigator with the Clinical Trial Support Center of The Leukemia & Lymphoma Society and will help us better navigate clinical trials. This webinar will be facilitated by Jennifer Gillette, our licensed staff social worker. Additionally, Mike Ansley and Ray Gillespie, both survivors, will share their incredible personal life-saving experiences with multiple clinical trials, including cGVHD trials (Imbruvica and Rockstar) will be discussed.
OCTOBER 20, 2020
This webinar will tackle it all—fatigue, GVHD, chemo brain, depression, stress, anxiety, sleep issues, mood disorders, PTSD, mindfulness, nutrition, advocating for yourself and more. We’ll cover how COVID-19 has affected cancer care. Bone marrow/stem cell transplant survivorship clinics across the nation have worked hard to keep you safe. Our top notch speakers will guide you on how to continue to thrive during a pandemic. We’ll also hear from a survivor who is now one-year post-transplant. This webinar will be led by Jennifer Gillette, our licensed staff social worker.
SEPTEMBER 29, 2020
The intestinal microbiota plays an important role in the pathophysiology of a variety of diseases. Studies in mouse and man from the 1970s have indicated that changes in the gut flora are associated with overall outcome after allogeneic hematopoietic cell transplantation (allo-HCT), including overall survival, graft-versus-host disease, engraftment and infection. These changes are due to decreased or altered diet, conditioning regimens, antibiotics and other drugs. Dr. van den Brink will give practical advice and a serving of hope to so many suffering with GVHD. Peter Adintori, the Clinical Research Dietitian in Dr. van den Brink’s lab, will offer additional practical nutrition tips to support patients during their journey with GVHD. As well, our licensed staff social worker, Jennifer Gillette will offer comfort and guidance to all regarding the emotional havoc GVHD can sometimes bring.
SEPTEMBER 23, 2020
National Heart, Lung, and Blood Institute, in partnership with the National Bone Marrow Transplant Link (nbmtLINK) hosted a free webinar on sickle cell disease transplantation options. Leading researchers Drs. John Tisdale and Courtney Fitzhugh discussed haploidentical and allogeneic transplant efforts to offer curative therapies for patients with sickle cell disease. They were joined by one of their very own patient success stories.
OCTOBER 29, 2019
This webinar addresses the many issues that relate to survivorship including risks, treatments, bone health, cGVHD, steroids, secondary cancer, PTSD, meditation, mindfulness, healthy habits post-transplant and much more.
OCTOBER 17, 2019
This webinar is to help you and your loved ones better understand the complexities of Chronic Graft Versus Host Disease (cGVHD) as it relates to a bone marrow/stem cell transplant journey.
OCTOBER 9, 2018
Presenter: Monica Fawzy Bryant, Esq., COO, Triage Cancer
SEPTEMBER 26, 2018
Presenters: Dr. Annie Im, Lew Christie, Survivor and Jennifer Gillette, LMSW
SEPTEMBER 12, 2018
Presenter: Jennifer Gillette, LMSW
OCTOBER 17, 2017
Presenter: Jennifer Gillette, LMSW
OCTOBER 10, 2017
Presenter: Michelle Bishop, PhD
OCTOBER 3, 2017
Presenter: Joanna Morales, Esq., Triage Cancer
SEPTEMBER 26, 2017
Presenter: Olivia Eusden, MSW, LICSW, Be The Match