nbmtlink Ennouncement

Here you will find past issue of our “Ennouncements.” These newsletters will keep you informed of our latest programs and services.

Transparent and Proud!

The National Bone Marrow Transplant Link is thrilled to announce that we have reached the Gold Seal of Transparency from GuideStar. This is a wonderful honor. By adding information about our goals, strategies, capabilities, achievements, and progress indicators, we are highlighting the difference we help to those embarking on a life-saving transplant.
Check us out: https://www.guidestar. org/profile/38-3027625

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Telephone Education and Support for Patients Coping with Chronic Graft Versus Host Disease
Groups are held twice a year, spring and fall. Spring 2016 dates are May 3,  10, 17, and 24, 2016.

Chronic Graft versus Host Disease (cGVHD) is one of the most difficult long-term complications following allogeneic transplant. It is associated with “decreased quality of life, impaired functional status, and the continued need for immuno-suppressive medication and difficulties that arise from this need.” (National Institutes of Health).

Since 2006, the nbmtLINK has recognized the unique circumstances and issues associated with cGVHD by offering telephone education and support groups for individuals living with the disease. The groups are facilitated by staff from the National Institutes of Health, including Sandra Mitchell, PhD, CRNP, AOCN, and Michael Krumlauf, RN, BSN, and Steven Z. Pavletic, MD, Head, GVH and Autoimmunity Unit.

To participate in these groups please contact Peggy Burkhard at 800-546-5268 or email peggyburkhard@nbmtlink.org

Caregivers’ Guide wins Excellence in Patient Education Award!
October, 2009

The nbmtLINK’s Caregivers’ Guide for Bone Marrow/Stem Cell Transplant, Practical Perspectives won the 2009 Excellence in Patient Education Award from the Cancer Patient Education Network (CPEN).  CPEN previously recognized nbmtLINK for its groundbreaking partnership with the National Institutes of Health through their “Gold Star” award.  This collaboration has resulted in several successful chronic Graft vs. Host Disease Telephone (cGVHD) Education and Support Groups.  If you would like additional information about these award-winning initiatives, please email info@nbmtLINK.org or call 800-546-5268.

The nbmtlink’s Interview with the Michigan Business Network

In a recent radio interview with the Michigan Business Network, Executive Director Peggy Burkhard shares the story of how the nbmtLINK impacts the lives of those navigating the bone marrow transplant journey, and how you can help us help those individuals.

Listen to the interview HERE!