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Here’s Help!

Introducing our NEW Online Resource Guide

In addition to our programs and services, nbmtLINK has created an interactive guide of organizations that provide helpful information and support for cancer/transplant patients and their loved ones.

You may search three different ways:

1) Use the Search bar to FIND the organization you want to find;
2) Use the All Categories drop down menu to look for organizations by category, (i.e. “clinical trials”);
3) Lastly, click on the Keyword button to search by a specific keyword term (i.e. “peer support”).
A print version of this directory is available. Please email your mailing address to info@nbmtlink.org for a free copy. The nbmtLINK provides this information as a courtesy and in no way implies endorsement of the organizations listed.
The nbmtLINK reserves the right to include/exclude any organization at its own discretion.

Disclaimer: Please note that these resources are regularly reviewed to ensure that links still work correctly and that the resources listed continue to be helpful to our visitors. If you find that a link isn’t working, information is incorrect or if you’d like to have your own organization listed here, please email peggyburkhard@nbmtlink.org.

Please select one or more types of assistance:

4th Angel Mentoring

(866) 520-3197

www.4thangel.org

Match patients and caregivers with a trained volunteer who is a cancer survivor or caregiver.

  • peer support

Air Care Alliance

www.aircarealliance.org

Volunteers from sixty different groups perform public benefit flying for health care, patient transport.

  • air transportation

Air Compassion for Veterans

(857) 228-4636

Aircompassionforveterans.us

Provides free air and ground transportation for ill, injured, and wounded veterans and their family for medical care.

  • air transportation
  • ground transportation

Alex’s Lemonade Stand Foundation

(866) 333-1213

www.alexslemonade.org

Dedicated to raising funds for childhood cancer research, raising awareness and supporting families. Childhood cancer data, SuperSibs! Program.

Travel For Care program helps to offset travel expenses (travel and lodging) for families who must travel to receive potentially lifesaving treatment for a child.

  • childhood cancer
  • education
  • lodging
  • transportation

Along Comes Hope

(805) 322-1423

https://alongcomeshope.com

Provides support for the families of children with cancer, through financial assistance with travel for treatment, creative emotional support programs, and advocacy to promote policy changes, awareness, and education.

  • advocacy
  • transportation

America’s Health Insurance Plans (AHIP)

www.ahip.org

National association whole members provide coverage for health care and related services.

  • insurance

American Cancer Society

(800) 227-2345

www.cancer.org

Disease and treatment information. Information on how to manage insurance, financial and legal issues, as well as patient/caregiver support, lodging (Hope Lodge) and transportation. Volunteer drivers provide transportation to and from medical appointments.

  • disease information
  • education
  • emotional support
  • helpline
  • lodging
  • research
  • transportation

American Childhood Cancer Organization

(855) 858-2226

www.acco.org

Resources for children with cancer including support beads and medical play kits

  • clinical trials
  • education
  • emotional support
  • peer support

Aplastic Anemia & Myelodysplastic Syndrome (MDS) International Foundation, Inc.

(800) 747-2820

www.aamds.org

Patient information for aplastic anemia, MDS, PNH and other bone marrow failure disease.

  • aplastic anemia
  • clinical trials
  • education
  • helpline
  • MDS
  • peer support
  • PNH

Be The Match®/National Marrow Donor Program

(888) 999-6743

www.bethematch.org

www.bethematch.org/patient
Educational programs and resources for patients, their caregivers and families before, during and after transplant. Patient services coordinators provide one-on-one professional guidance and support. Annual transplant center directory, financial tools and resources. Disease information regarding GVHD including prevention, signs, symptoms, and recovery. Email: patientinfo@nmdp.org

Additional Toll Free Phone: (800) 627-7692 for Be The Match registry; learn how to join the bone marrow registry or host a donor drive. For information on public cord blood donation and cord banks, please visit www.bethematch.org/cordblood

  • cord blood
  • counseling
  • donor drives
  • donor information
  • education
  • grants
  • GVHD
  • marrow registry
  • peer support
  • transplant center directory

Blood and Marrow Transplant Information Network (BMT InfoNet)

(888) 597-7674

www.bmtinfonet.org

Local Number: (847) 433-3313

Patient-friendly books on transplant and graft-versus-host disease. Annual survivorship symposium and webinar on issue of interest to transplant patients. Peer support program.

  • GVHD
  • peer support
  • transplant center directory

Bone Marrow & Cancer Foundation

(800) 365-1336

www.bonemarrow.org

Local Phone: (212) 838-3029
Provides financial assistance, educational information and support programs. Financial assistance in the form of Lifeline Fund providing living and ancillary expenses; One-to-One Funds to support a specific patient and Scholarship Grants for educational purposes of bone marrow stem cell and cord blood transplant survivors. Email: patientservices@bonemarrow.org

  • education
  • educational grants
  • housing
  • living expenses
  • medical equipment
  • medication
  • patient financial support
  • transplant center directory

BoneMarrowTest.Com (Kashi Clinical Laboratories)

(877) 565-3287

www.bonemarrowtest.com

This company offers easy, affordable HLA testing to help patients and families identify compatible donors for a transplant. HLA test kit can be ordered on this site.

  • bone marrow test

BostonSight

(781) 726-7337

www.bostonsight.org

People experiencing dry eye and other ocular complications from graft versus host disease may get relief from PROSE treatment and SCLERAL lens product.

  • dry eye
  • GVHD

Brenda Mehling Cancer Fund

https://www.youngsurvival.org/directory/young-adult/brenda-mehling-cancer-fund

Fax: (800) 878-9184

Support for cancer patients 18-40 currently undergoing cancer treatment with assistance to meet daily needs. It provides home health care service, co-payments, temporary housing and other temporary bills like rent, mortgage payments, insurance and food.

  • car insurance
  • co-pay assistance
  • groceries
  • rent/mortgage
  • temporary housing
  • transportation

Cancer and Careers

(646) 929-8032

www.cancerandcareers.org

Cancer and Careers empowers and educates people with cancer to thrive in their workplace by providing expert advice, interactive tools and educational events.

  • education
  • jobs

Cancer Financial Assistance Coalition

www.cancerfac.org

A coalition of financial assistance organizations, CFAC is a group of organizations that offer an interactive database to search financial or practical help by diagnosis, location and need.

Unable to respond to individual requests for financial assistance, please search the CFAC database. You may also contact each CFAC member organization individually for guidance and possible financial assistance.

  • co-pay assistance
  • financial assistance
  • food
  • home care
  • housing
  • legal
  • lodging
  • medical equipment
  • medication
  • scholarships
  • transportation
  • utilities
  • wig

Cancer Hope Network

(877) 467-3638

www.cancerhopenetwork.org

Cancer Hope Network provides free and confidential one-on-one support to cancer patients and their families by matching cancer patients and/or family members with trained volunteers who have themselves undergone and recovered from a similar cancer experience.

  • peer support

Cancer Support Community (formerly Gilda’s Club)

(888) 793-9355

www.cancersupportcommunity.org

Local number: 202-659-9709

Support services for cancer patients and information about caregiving; links to in-person support groups.

  • education
  • helpline
  • support groups

Cancer.net

(888) 651-3038

www.cancer.net

Local number: (571) 483-1780

Cancer.Net is a patient information website that brings the expertise and resources of American Society of Clinical Oncology (ASCO) to people living with cancer and those who care for and about them.

  • disease information

CancerCare Co-Payment Assistance Foundation

www.cancercarecopay.org/

The CancerCare Co-Payment Assistance Foundation addresses the needs of individuals who cannot afford their insurance co-payments to cover the cost of chemotherapy and targeted treatments for treating cancer.

  • co-pay assistance

CancerCare, Inc.

(800) 813-4673

www.cancercare.org

Local number: (212) 712-8080

Support services for cancer patients and survivors including peer support. Additionally, there are support groups and information for caregivers. Limited financial assistance available for eligible individuals for treatment-related costs such as transportation, home and child care and co-payment assistance for chemotherapy and targeted treatment drugs. Site includes an online, searchable database of financial and practical assistance for cancer patients.

  • child care
  • co-pay assistance
  • counseling
  • education
  • home care
  • medical equipment
  • medication
  • support groups
  • transportation

CareGiving.com

(773) 343-6341

www.caregiving.com

Information and peer support for caregivers before, during and after caregiving.

  • general financial assistance
  • peer support

CaringInfo

(800) 658-8898

www.caringinfo.org

A program of the National Hospice and Palliative Care Organization, provides free resources to help people make decisions about end-of-life care and services.

  • end-of-life care
  • Palliative Care

Center for International Blood and Marrow Transplant Research (CIBMTR)

(414) 805-0700

www.cibmtr.org

Data on transplant and post- transplant outcomes.

  • outcome data

Children’s Cancer Recovery Foundation

(800) 238-6479

www.childrenscancerrecovery.org

Local Phone: (717) 688-7940

Toys and games for children, camp scholarships for children in remission and Helping Hands Fund which provides emergency bridge payments to utility companies and landlords.

  • rent/mortgage
  • scholarships
  • toys/games
  • utilities

Children’s Leukemia Foundation of Michigan

(248) 530-3000

www.leukemiamichigan.org

Only for residents of the State of Michigan, this organization provides disease information and resources, emotional support, holiday toys and holiday meal assistance. Patient Reimbursement Fund to help cover the cost of prescriptions and transportation. A Special Needs Grant (one-time only) for unexpected life expenses such as car repairs, utility bills.

  • grant program
  • leukemia
  • prescriptions
  • transportation

Children’s Leukemia Research Association, Inc.

(516) 222-1944

www.childrensleukemia.org

Co-Pay Assistance Programs offers help with leukemia-related medical bills.

 

  • co-pay assistance
  • education
  • leukemia
  • research

Children’s Organ Transplant Association (COTA)

(800) 366-2682

www.cota.org

The Children’s Organ Transplant Association (COTA) exists to assist children and young adults who require a life-saving organ, bone marrow, cord blood or stem cell transplant by offering fund-raising assistance and a Transplant Expense Estimator.

 

  • fundraising
  • treatment expense

Coping With Cancer (magazine & website)

(615) 790-2400

www.copingmag.com

Consumer magazine and website sharing information from the medical professionals and coping strategies from patients, caregivers and their loved ones.

  • caregiving
  • emotional support

Corporate Angel Network

(914) 328-1313

www.corpangelnetwork.org

Arrange free flights to transport cancer patients who qualify to hospitals using the empty seats on corporate aircraft flying on routine business.

  • transportation

CureSearch for Children’s Cancer

(800) 458-6223

http://www.curesearch.org/

Their mission is to end childhood cancer by driving research with measurable results in an accelerated time frame.

  • clinical trials
  • disease information
  • research

DKMS US

(212) 209-6700

www.deletebloodcancer.org

DKMS US is dedicated to helping patients and their loved ones by spearheading donor drives in order to provide hope and support to benefit everyone by growing the national bone marrow donor registry.

  • donor drives

Elephants and Tea

elephantsandtea.com

Elephants and Tea is a media company with the mission to help adolescent and young adult (AYA) patients, survivors and caregivers experience relief through self-expression, inspiring others during their cancer journey and connecting people with supportive organizations across the nation. We have the only magazine written for and by AYA cancer patients, survivors and caregivers telling their story in their own words.

  • emotional support
  • online community

Family Reach

(973) 394-1411

www.familyreach.org

Boston Phone: (857) 233-2764. Provides a Financial Handbook for educational purposes and a Financial Navigator to work alongside patients and their oncology team. Grants for patients in active treatment covering everyday needs such as mortgage, rent, car payments, insurance, utilities, transportation to treatment center, lodging, daycare, homecare and palliative care

  • car payment
  • daycare
  • financial education
  • financial navigator
  • homecare
  • insurance
  • lodging
  • Palliative Care
  • rent/mortgage
  • transportation
  • utilities

Family Voices

(888) 835-5669

www.familyvoices.org

Family Voices is a national, grassroots clearinghouse for information and education concerning the health care of children with special health needs.

  • advocacy

Fanconi Anemia Research Fund, Inc.

(888) 326-2664

www.fanconi.org

Information and education for patients and their families.

  • education
  • fanconi anemia
  • research
  • support groups

Friends’ Health Connection

www.friendshealthconnection.org

Connects people who are currently experiencing or who have overcome the same disease, illness, handicap or injury in order to communicate for mutual support.

  • peer support

Good Days

(877) 968-7233

www.mygooddays.org

Helps people overcome financial burdens while they deal with life-threatening and debilitating diseases. Help with co-pays and premium assistance, medication and travel expenses.

  • co-pay assistance
  • insurance
  • lodging
  • medication
  • transportation

Group Loop-Online Support for Teens with Cancer

www.grouploop.org

Group Loop is a safe place for teens with cancer and their parents to build an online community to find support, education and hope when dealing with a cancer diagnosis. It is sponsored by Cancer Support Community.

  • online community

Healthcare Hospitality Network

(800) 542-9730

www.hhnetwork.org

A nationwide professional association of nonprofit organizations that provide lodging and support services to patients, families and their loved-ones who are receiving medical treatment far from their home community.

  • lodging

HealthWell Foundation

(800) 675-8416

Helps the underinsured afford critical medical treatment by providing assistance with co-pays, premiums, deductibles, out of pocket expenses.

  • co-pay assistance
  • deductibles
  • grant program
  • insurance premiums
  • medication
  • out-of-pocket expenses
  • supplies
  • travel expense

HelpHOPELive

(800) 642-8399

www.helphopelive.org

(Formerly National Transplant Assistance Fund) Support community-based fundraising for people with unmet medical and related expenses.

  • fundraising

Humor Beats Cancer

www.humorbeatscancer.com

This is a 501(c)(3) nonprofit organization for young adult cancer patients, survivors
and their caregivers to share humorous and poignant stories about cancer and to get the needed support during this tough, unique journey. They also provide care packages to those going through cancer treatment to brighten their days during a tough time.

  • emotional support
  • online community

Imerman Angels

(877) 274-5529

www.imermanangels.org

Additional toll-free number: (866) 463-7626

Peer support for cancer patients of any age, survivors, caregivers and loved ones.

  • peer support

Immune Deficiency Foundation

(800) 296-4433

www.primaryimmune.org

Local Phone: (410) 321-6647

Helps patients and medical community gain a broader understanding of primary immunodeficiency diseases through education and outreach efforts.

  • clinical trials
  • education
  • immunodeficiency
  • peer support
  • research

International Myeloma Foundation

(800) 452-2873

www.myeloma.org

Local Phone: (818) 487-7455

Information regarding multiple myeloma. Information about global clinical trials.

  • clinical trials
  • multiple myeloma
  • research
  • support groups

International Waldenstrom Macroglobulinemia Foundation

941-927-4963

www.iwmf.com

Provides information and educational programs. Offers mutual support and encouragement to the WM community and others with an interest in the disease.

  • education
  • peer support
  • research
  • support groups

Jason Carter Clinical Trials Program

(888) 814-8610

www.jasoncarterclinicaltrialsprogram.org

Helps patients and their families locate and join clinical trials pertaining to blood cancers or blood disorders via an interactive search program.

  • clinical trials
  • education
  • transportation

Joe’s House

(877) 563-7468

www.joeshouse.org

Helps cancer patients find a place to say when traveling for medical treatment via an interactive search option.

  • housing
  • lodging

Kids Konnected

(800) 899-2866

www.kidskonnected.org

Providing friendship, understanding, education, and support for kids and teens who have a parent with cancer or have lost a parent with cancer.

  • education
  • support groups

Leukemia Research Foundation

(847) 424-0600

www.allbloodcancers.org

Funding research for all blood cancers. Financial assistance for Illinois Residents or those within a 100-mile radius of Chicago, for treatment-related expenses not covered by medical insurance that may include doctor visits, co-pays, deductibles, hospital care, laboratory work and prescription expenses for transplant recipients.

  • blood cancers
  • co-pay assistance
  • deductibles
  • doctor visits
  • education
  • hospital care
  • laboratory work
  • leukemia
  • prescription expense
  • research

Livestrong Foundation

(877) 236-8820 General Information

www.livestrong.org

Local number: (855) 220-7777 toll-free

Support entrepreneurs developing products to improve treatment and patient care.

  • education
  • fertility

Lymphoma Research Foundation

(800) 500-9976

www.lymphoma.org

Information and funding research for lymphoma. Provides limited financial assistance for qualified expenses related to lymphoma treatment such as medical bills, transportation costs and lodging. Clinical trial information service.

  • clinical trials
  • education
  • grant program
  • helpline
  • lodging
  • lymphoma
  • medical bills
  • research
  • transportation

Marrow Forums

www.marrowforums.org

Discussion forums for people affected by bone marrow failure diseases. Patients and their families, friends, and caregivers assist and support each other through discussion and sharing. The diseases are rare, but the patients and those who care about them are not alone!

  • online community

MDS Foundation

(800) 637-0839

www.mds-foundation.org

Information about myelodysplastic syndromes and related myeloid neoplasms, and clinical trials.

  • clinical trials
  • education
  • MDS
  • myeloid neoplasms
  • support groups

Medicare Rights Center

www.medicarerights.org

National non-profit consumer service organization that works to ensure access to affordable healthcare for older adults and people with disabilities. Provides health insurance counseling and education.

  • advocacy
  • insurance
  • Medicare

Medicare.gov

www.medicare.gov

Explanation of insurance coverage, doctors, medical facilities that accept Medicare. Information on home health and transitional care covered services, advance directives, and long-term care.

  • healthcare
  • insurance
  • Medicare

Medicine Assistance Tool (MAT)

www.medicineassistancetool.org

MAT is a free-to-use search engine that focuses its searches on patient assistance resources available to eligible patients. Building upon the Partnership for Prescription Assistance (PPA), MAT gives patients, loved ones and health care providers a single point of access to hundreds of public and private assistance programs, as well as connecting them with more transparent information about the cost of medicine.

  • clinics
  • medication

Meredith A. Cowden Foundation

(330) 864-1978

www.cowdenfoundation.org

Conferences for transplant survivors, their families and caregivers presenting cutting edge research and new treatments for GVHD. Raising funds for blood cancer and GVHD research.

  • GVHD

Multiple Myeloma Research Foundation

(866) 603-6628

www.themmrf.org

Local Phone: (203) 229-0464

Information and funding research on multiple myeloma. Clinical Trial Finder.

  • clinical trials
  • multiple myeloma
  • research

Myeloma Crowd Care Foundation

www.crowdcare.org

Helpful information and resources for patients with multiple myeloma.

  • clinical trials
  • multiple myeloma
  • online community
  • research

MyMPNConnect

(855) 446-2983

www.mpnconnect.com

Information to help people living with a myeloproliferative neoplasm (MPN), their family, caregivers, friends and other members of the community.

  • MPN

National Alliance for Caregiving

(202) 918-1013

www.caregiving.org

National, non-profit coalition advancing family caregiving through research, innovation and advocacy.

  • advocacy
  • research

National Bone Marrow Transplant Link (nbmtLINK)

(800) 546-5268

www.nbmtlink.org

Local number: (248) 358-1886

Supporting and informing people about their cancer diagnosis and the transplant process through personalized support is at the core of the mission of the National Bone Marrow Transplant Link.
Since 1992, the LINK has been linking and caring, providing a number of services and resources designed to meet the needs of the patient and caregiver community while partnering with healthcare professionals globally.

Offering webinars and telephone series regarding GVHD. Programs offer education with available time for questions and answers from a renowned medical specialist. Previous recordings available on the LINK website.

  • education
  • GVHD support & resources
  • peer support

National Cancer Institute

(800) 422-6237

www.cancer.gov

Cancer information services for patients and caregivers regarding cancer, treatment, clinical trials and transplant. NCI cancer blog.

For information on cancer clinical trials, please visit www.cancer.gov/clinicaltrials

  • clinical trials
  • education
  • research

National Cancer Institute- GVHD Program

www.clinicaltrials.gov/ct2/show/NCT00092235

An important resource for people living with chronic GVHD is the National Cancer Institute’s chronic GVHD clinical trial program. Patients between the ages of 1 to 75 can schedule an appointment for a comprehensive evaluation of their GVHD. The medical evaluation is free of charge and takes place in Bethesda, Maryland. The program is part of a clinical trial designed to gather a national database of information about chronic GVHD so that better treatments can be developed. To learn more about this study, you or your doctor may contact the study research staff using the contact information provided by the sponsor.

  • clinical trials
  • GVHD

National Coalition for Cancer Survivorship

(877) 622-7937

www.canceradvocacy.org

Advocates for quality cancer care; resource for cancer care policy. Offers a Cancer Survivor Toolbox and specific disease information.

  • advocacy
  • caregiving
  • end-of-life care

National Comprehensive Cancer Network (NCCN)

(215) 690-0300

www.nccn.org

NCCN is a not- for-profit alliance of 25 of the world’s leading cancer centers. NCCN develops resources that aim to assist patients and their caregivers with overcoming the challenges related to cancer.

  • education

National Heart, Lung and Blood Institute

(800) 411-1222

www.nhlbi.nih.gov

Email inquiries: prpl@cc.nih.gov

The National Heart, Lung, and Blood Institute conducts world-class research through ongoing clinial trials at the NIH Clinical Center in Bethesda, Maryland. NHLBI conducts clinical trials for a number of blood diseases and disorders which may include Graft versus Host Disease (GVHD), AML/CLL/SLL leukemias, lymphocytosis and lymphomas, severe aplastic anemia, Fanconi anemia, Sickle Cell Disease, telomere related diseases, bone marrow failure syndromes, and hematologic malignancies. To learn more about current clinical trials conducted by NHLBI, please call or email the Office of Patient Recruitment at the contact above.

  • clinical trials
  • GVHD
  • research

National Institutes of Health (NIH)

(800) 411-1222

www.nih.gov

https://www.nih.gov/health-information/nih-clinical-research-trials-you

The NIH is comprised of 27 Institutes/Centers and each facility offers access to their own FREE clinical trial. Covered expenses such as travel and lodging will vary by the specific clinical trial. For more information, call this telephone number and choose the option for patient recruitment.

  • clinical trials
  • education
  • lodging
  • travel

National Organization for Rare Disorders (NORD)

(800) 999-6673

www.rarediseases.org

Local Phone: (203) 744-0100

Information on rare diseases including GVHD. Patient financial assistance with medication, insurance premiums and co-pays, diagnostic testing and travel for clinical trials or consultation with disease specialists. This website provides links to Medication Assistance Resources, Free or Reduced Cost Medical Care, Cancer Financial Support, Travel and Recreation and School / Employment Resources. Note: GVHD is classified as a rare disease.

  • clinical trials
  • co-pay assistance
  • disease information
  • education
  • GVHD
  • lodging
  • medicine
  • transportation

National Patient Travel Center (Mercy Medical Angels)

(800) 296-1217

www.patienttravel.org

Information about all forms of charitable, long-distance medically related transportation including commercial airline transportation, ground transportation, and volunteer pilot flights.

  • air transportation
  • ground transportation
  • transportation

National Respite Locator Service

www.respitelocator.org

Tool for families to locate respite and crisis care services in their communities; and to serve as a strong voice for respite in all forums.

  • caregiving

Patient Advocate Foundation

(800) 532-5274

www.patientadvocate.org

Arbitration, mediation and negotiation regarding issues of care, medical debt and job retention. Co-pay relief and small financial grant program. Scholarship program for undergraduate or graduate studies for legal residents of the United States and have been diagnosed with or treated for cancer, a chronic or life-threatening debilitating disease as a child or young adult.

  • advocacy
  • co-pay assistance
  • college scholarship
  • medication

Patient Resource

(800) 497-7530

www.patientresource.com

Local number: (913) 725-1600

Cancer guides by diagnosis. Provides resource listing for cancer information, financial assistance and caregiver help.

  • caregiving
  • disease information
  • education
  • financial education
  • peer support

Patient Services, Inc.

(800) 366-7741

www.patientservicesinc.org

Financial resource for qualified patients with specific rare chronic diseases including premium and co-payment assistance, Medicare Part D co-insurance, infusion and nursing services and travel assistance to/from a treatment center.

  • co-pay assistance
  • infusion
  • insurance premiums
  • Medicare
  • nursing
  • transportation

Resolve

(866) 668-2566

www.resolve.org

Local number: (703) 556-7172

Information regarding infertility and family building options.

  • fertility
  • helpline
  • support groups

Richard & Annette Bloch Family Foundation

(800) 433-0464

www.blochcancer.org

Local number: (816) 854-5050

General cancer information for the patient and their loved ones.

  • education
  • helpline

Rosalynn Carter Institute

(229) 928-1234

www.rosalynncarter.org

Supports the mental health and well-being of individuals, families, and professional caregivers; effective caregiving practices.

  • advocacy
  • caregiving
  • education

Single Mothers Grants

www.singlemothersgrants.org

Listing of helpful organizations for low income families requiring financial assistance with utility payment, mortgage, rent and medical bills.

  • childcare
  • government assistance
  • grant programs
  • living expenses
  • medication
  • rent/mortgage

Society For Assisted Reproductive Technology (SART)

(205) 978-5000

www.sart.org

Professional organization setting and maintaining standards in the area of assisted reproduction.

  • fertility

Starlight Children’s Foundation

www.starlight.org

They partner with experts to create moments of joy and comfort for hospitalized kids and their families.

  • emotional support

The Foundation for Peripheral Neuropathy

www.foundationforpn.org

Provides education for patients, and promotes research into the causes of and cures for peripheral neuropathy.

  • education
  • neuropathy
  • research

The Leukemia & Lymphoma Society

(800) 955-4572

www.lls.org

The Leukemia & Lymphoma Society is the world’s largest voluntary health organization dedicated to funding blood cancer research, education and patient services. LLS is the leading source of free, highly specialized blood cancer information, education and support for patients, survivors, families and healthcare professionals.

Patient Aid Program provides payments to blood cancer patients in active treatment to ground transportation, air travel, lodging related expenses and co-pay assistance. The Urgent Need Program helps blood cancer patients enrolled in clinical trials with assistance for non-medical expenses including rent, mortgage, lodging, utilities, childcare, elder care, food, transportation, car repair, car insurance, telephone service and acute dental work related to treatment. Nurse navigators assist patients and caregivers find clinical trials.

  • clinical trial expenses
  • co-pay assistance
  • education
  • insurance
  • leukemia
  • lodging
  • lymphoma
  • medication
  • peer support
  • research
  • support group
  • transportation

The National Children’s Cancer Society

(314) 241-1600

http://www.thenccs.org/

Provides emotional, financial and educational support to children with cancer, their families and survivors. Provides travel costs associated with children’s cancer treatment and other living expenses while child is hospitalized for an extended time.

  • education
  • living expenses
  • scholarships
  • transportation

The Samfund

(617) 938-3484

www.thesamfund.org

Provides support to young adults who are struggling financially due to cancer. Twice a year, gives grants to survivors aged 21-39 to help with medical bills, living expenses, education.

  • grants
  • living expenses
  • medical bills

Ticket to Work

www.yourtickettowork.com

The Ticket to Work and Self-Sufficiency Program is an employment program for people with disabilities who are interested in going to work.

  • jobs

Together St Jude

https://together.stjude.org/en-us

Together is a free website for anyone affected by childhood cancer, no matter where the patient receives treatment. Powered by St. Jude Children’s Research Hospital, families will find trusted information, practical resources, and shared stories.

  • education
  • GVHD
  • leukemia
  • lymphoma
  • research

Triage Cancer

(424) 258-4628

www.triagecancer.org

National, nonprofit organization that provides education on the practical and legal issues that may impact individuals diagnosed with cancer and their caregivers.

 

  • advocacy
  • legal

U. S. Dept. of Health & Human Services, Health Resources and Services Administration (HRSA)

bloodcell.transplant.hrsa.gov

Transplant resource and donor information. Options for cord blood banking and donation.

  • cord blood
  • donor information
  • transplant resources

U.S. National Institutes of Health – Clinical Trials

(301) 496-4000

www.clinicaltrials.gov

Registry and results database of publicly and privately supported clinical studies around the world. When searching this site for clinical trials relating to GVHD, imperative to include “chronic” GVHD.

(800) 411-1222 Office of Patient Recruitment

 

  • clinical trials
  • GVHD support & resources

Ulman Foundation

(888) 393-3863

www.ulmanfoundation.org

The Ulman Foundation addresses areas of cancer support, advocacy, and education specific to young adults dealing with cancer. The Comprehensive Support Program for Young Adults Affected by Cancer (CSP) offers a support network that addresses the unique needs of this population, including college scholarships, networking groups, and a survival guidebook.

  • advocacy
  • scholarships

United Way

www.unitedway.org

Can connect you to resources in your community that may assist you with local support for a variety of daily living needs.

  • living expenses

Viacord

(866) 668-4895

www.viacord.com

Provides cord blood and cord tissue collection, processing and five years of storage at no cost to families who have a child in need of a transplant and meet the other requirements of the program.

  • donor information

Vital Options International

(818) 508-5657

www.vitaloptions.org

Provides cancer information, communication and advocates for cancer patients internationally. The grant program will assist those facing a significant financial hardship due to the diagnosis of a chronic condition such as cancer.

  • advocacy
  • child care
  • groceries
  • medication
  • prepared meals
  • rent/mortgage
  • transportation
  • treatment costs
  • utilities