The information in these podcasts should not be construed as medical advice. Please consult with your health care provider regarding your medical decisions and treatment. The listed resources are not intended to be endorsements.
SEASON 1 : EPISODE 0
Peggy Burkhard, Executive Director of the National Bone Marrow Transplant Link, hosts this first season of Marrow Masters. We will focus on Chronic Graft Versus Host Disease. We are very fortunate to have leading experts in the field of bone marrow/stem cell transplant available to share their expertise on this very complicated subject.
SEASON 1 : EPISODE 1
Basics of cGVHD by Dr. Joseph Uberti of Karmanos Cancer Institute. Dr. Uberti will discuss acute and chronic Graft Versus Host Disease (GVHD), examples of organs affected by both acute and chronic GVHD, your risk of getting cGVHD and the importance of staying in touch with your transplant center.
SEASON 1 : EPISODE 2
Current and New Treatment Options for cGVHD with Dr. Joseph Uberti of Karmanos Cancer Institute. Dr. Uberti will discuss medications and options, steroids and its side effects- muscle weakness, diabetes, and what is on the horizon.
SEASON 1 : EPISODE 3
Stacey Prieur, RN, BMT Coordinator, Karmanos Cancer Institute discusses being your own advocate, reporting symptoms, Light Therapy and embracing living.
SEASON 1 : EPISODE 4
Viki Anders, Nurse Practitioner Graft Versus Host Disease Clinic Coordinator, The Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins discusses the treatment impacts to skin, fingernails, joints, bone mass, mouth, lips, GI, and mood. She offers up products and resources to deal with the side effects of treatment.
SEASON 1 : EPISODE 5
Patient Sharde Fultz shares tips for Living with cGVHD. Sharde shares her coping mechanisms, tips and challenges on fatigue and pacing yourself, living life to the fullest, and the importance of seeing a specialized doctor when you are not sure if it is cGVHD.
SEASON 1 : EPISODE 6
Licensed Social Worker, Jen Gillette, shares advice on thriving with cGVHD including: finding ways to reconnect with the world around you, dealing with exhaustion and fatigue, and looking for ways to be even just a little bit stronger each day.