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Marrow Masters Podcast

nbmtLINK Marrow Masters Season 14

The information in these podcasts should not be construed as medical advice. Please consult with your health care provider regarding your medical decisions and treatment. The listed resources are not intended to be endorsements.

SEASON 14 : EPISODE 0

Season 14 Trailer : The Parts of Chronic Graft Versus Host Disease (GVHD) We Don’t Often Talk About

Season 14 focuses on the parts of chronic graft versus host disease we don’t often talk about. We’ll cover male and female sexuality, and atypical presentations of chronic GVHD. We’ll share a patient and caregiver perspective related to chronic GVHD and take a deep dive into the psychosocial and emotional struggles of those with this rare and sometimes debilitating disease.

SEASON 14 : EPISODE 1

Men’s Sexual Health and GVHD w Dr. Jose Flores Ramirez of MSK

This epsiode includes content related to reproductive organs and sexual health and may not be suitable for all listeners.

In this podcast, we welcome Dr. Jose Flores, an expert in sexual and reproductive medicine at New York’s Memorial Sloan Kettering Cancer Center. We dive deep into the often challenging but crucial topic of male sexuality, particularly in the context of cancer treatment and graft versus host disease (GVHD).

A transcript of this episode can be found here: https://marrowmasters.simplecast.com/episodes/mens-sexual-health-gvhd/transcript

SEASON 14 : EPISODE 2

Caregiver Perspective: Chronic Graft Versus Host Disease: Meet Angie Giallourakis of Elephants and Tea

In this podcast, we have the pleasure of speaking with Angie Giallourakis, a dedicated advocate and founder of the Steven G. Cancer Foundation and Elephants and Tea. Angie shares her powerful story of being a caregiver to her son Steven, who battled cancer twice. Steven was first diagnosed with stage four osteosarcoma in 2006, and later with secondary acute myelogenous leukemia (AML) in 2008, necessitating a bone marrow transplant.

SEASON 14 : EPISODE 3

Women’s Sexual Health and Graft Versus Host Disease Discussed with Dr. Tosin Goje of Cleveland Clinic

This epsiode includes content related to reproductive organs and sexual health and may not be suitable for all listeners.

In this episode, we speak with Dr. Oluwatosin “Tosin” Goje, an Associate Professor of OBGYN and reproductive biology at the Cleveland Clinic. We delve into the critical and often under-discussed topic of female sexual health issues related to chronic genital graft-versus-host disease (GVHD), a condition affecting many women post bone marrow transplant.

SEASON 14 : EPISODE 4

Atypical Graft Versus Host Disease Presentations Examined with Dr. Doris Ponce of MSKCC

Dr. Doris Ponce from Memorial Sloan Kettering Cancer Center delves into atypical presentations of chronic graft-versus-host disease (cGVHD). As an associate member, co-chair of the Center for Hematologic Malignancies, and director of the Graft-Versus-Host Disease Program, Dr. Ponce provides an in-depth understanding of this complex condition.

SEASON 14 : EPISODE 5

Surviving & Thriving: JR Brandt’s Journey with Chronic Graft Versus Host Disease

In this episode, we chat with JR Brandt of Montana, an acute lymphocytic leukemia (ALL) survivor, about his journey through diagnosis, treatment, and living with chronic graft-versus-host disease (cGVHD). JR shares his initial diagnosis story, describing how what he thought was a minor infection led to a leukemia diagnosis complicated by the Philadelphia Positive chromosome. He underwent 26 days of chemotherapy and was eventually cleared for a bone marrow stem cell transplant at Stanford University in March 2017.

SEASON 14 : EPISODE 6

Navigating Psychological Distress of Graft Versus Host Disease: Insights from Dr. Hermi Amonoo

In this episode, we speak with Dana Farber Cancer Institute’s Dr. Hermioni “Hermi” Amonoo, an esteemed psychiatrist at Brigham and Women’s Hospital and associate professor at Harvard Medical School. Our discussion centers on the psychological distress associated with graft versus host disease (GVHD) following a bone marrow stem cell transplant. Dr. Amonoo sheds light on the significant psychological challenges patients face, noting that approximately 50% experience clinically significant depression, and about a third suffer from anxiety. This psychological distress permeates various aspects of daily life, affecting routines, relationships, and social roles.

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