was successfully added to your cart.

Category Archives: Lunch & Learn

Donor Dad Shares AML Clinical Trial Success Story

By | Lunch & Learn | No Comments

This month’s telephone educational and support program will highlight the story of a donor dad who stopped at nothing to save
his daughter, Kenza, diagnosed with acute myeloid leukemia (AML) at just nine months old. Dr. Omar Durani of Dallas, Texas will talk
about Kenza’s life-saving clinical trial five years ago, his family today, the need to spread the word to create much needed awareness
through DKMS, and his incredible haplo donor experience. Leah Szumita, MS, RN, CCRN, ACNS-BC, Director, Clinical Trials Support
Center of The Leukemia & Lymphoma Society will join Dr. Durani and further emphasize the importance of clinical trials and how to better
understand and navigate them. The nbmtLINK’s licensed staff social worker, Jennifer Gillette, will facilitate the program. There will also be
plenty of time for live questions.

Read More

Adult and Pediatric Blood Cancer Updates and Advances

By | Lunch & Learn | No Comments

This month, as we recognize Pediatric Cancer and Blood Cancer Awareness Month, this call-in educational support program will focus
on updates and innovative treatments as they relate to blood cancer diagnoses in adults and children. Dr. Maria Luisa Sulis is an oncologist
specializing in lymphomas and leukemias at Memorial Sloan Kettering Cancer Center who will share her expertise. As well, a parent to a
pediatric patient will share his/her experience, best tips and coping skills. The nbmtLINK’s licensed staff social worker, Jennifer Gillette
will facilitate the program. There will also be plenty of time for live questions.

Read More

Cancer Survivor’s Guilt, Negative Feelings and Despair Addressed

By | Lunch & Learn | No Comments

This month’s telephone educational and support program will focuson survivor’s guilt, the anxiety you may feel when a peer passes
away as well as how to handle well-intended positivity if you are experiencing negative feelings and despair. Shirley Otis-Green, MSW,
MA, ACSW, LCSW, OSW-CE, FNAP, FAOSW of Collaborative Caring will break it down for us. Two time bone marrow transplant recipient and
survivor Bridget Casey will share her personal experience and some valuable lessons learned along the way. The nbmtLINK’s licensed staff
social worker, Jennifer Gillette, will facilitate the program. There will also be plenty of time for live questions.

Read More

GVHD and Steroids: Let’s Explore the Love/ Hate and Other Options

By | Lunch & Learn | No Comments

This month’s telephone educational and support program will focus on the love/hate of steroids as they relate to chronic GVHD. Dr. Masumi Ueda Oshima, Assistant Professor and Assistant Medical Director for the Inpatient Adult BMT Program at Fred Hutchinson Cancer Research Center and Seattle Cancer Care Alliance/University of Washington will break it down for us and share her expertise. Sharde Fultz, a chronic GVHD survivor, will share her personal experience including details about how she has managed steroid use and GVHD through the years. The nbmtLINK’s licensed staff social worker, Jennifer Gillette, will facilitate the program. There will also be plenty of time for live questions.

Read More

Everything You Need to Know About CAR T-Cell Therapy

By | Lunch & Learn | No Comments

This month’s telephone educational and support program will focus on all things CAR T-cell Therapy. Dr. Lawrence E. Morris is a board certified oncologist at both the Northside Hospital Leukemia Program and Northside Hospital Inpatient BMT Unit, and the Apheresis Collection Facility Co-Director of Atlanta Blood Services. Dr. Morris will break it down for us and share his expertise. CAR T-cell patient, Ray Gillespie, an NHL survivor, now in full remission will share his personal experience including details about his life-saving clinical trial. The nbmtLINK’s licensed staff social worker, Jennifer Gillette, will facilitate the program. There will also be plenty of time for live questions.

Read More

How the Reconstitution of the Immune System After Transplantation Influences Outcomes

By | Lunch & Learn | No Comments

Jaap Jan Boelens, MD, PhD, Chief, Stem Cell Transplantation, MSKCC and Cellular Therapies and Professor of Pediatrics at Weill Cornell Medical College of Cornell University will break it down for us and help transplant patients learn about factors that influence the immunological situation post-transplant that will result in the best possible outcomes. As well, a young patient’s parent/caregiver will share their personal experience and best tips. The nbmtLINK’s licensed staff social worker, Jennifer Gillette, will facilitate the program. There will also be plenty of time for live questions.

Read More

Improving Quality of Life with Chronic Graft Versus Host Disease (cGVHD)

By | Lunch & Learn | No Comments

Improving the Quality of Life and Care for Patients Living with Chronic Graft Versus Host Disease (cGVHD). This presentation will focus on the unmet needs, barriers and supportive care for patients with cGVHD. It will include information on palliative care This will be presented by Areej El-Jawahri, MD, Assist. Professor of Medicine at Harvard Medical School, Director of the Bone Marrow Transplant Survivorship Program at the Massachusetts General Hospital, and Associate Director of Massachusetts General Hospital Cancer Center Survivorship Program. Additionally, Barbara Ginsberg will share her wisdom as a patient with cGVHD.

Read More