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Nuances of a New Normal

A seven part blog series with David Weinstein

We’re so thankful and honored to present the following seven part blog series. David Weinstein shares his heart, grit, soul and bone marrow transplant journey with us as we roll out this series, once a month, here in our E-nnouncement newsletter, starting this month. Each blog post will inspire you regardless of where you are on your journey. So sit back and feel the sun on YOUR face as you soak up this very special series. Thank you David. You are a gift to this world.

Beth Ades - Racing to Raise Awareness

Racing to Raise Awareness

By Beth Ades

Building a race car is our “garage therapy,” where family and friends come together. The 2021 season started with fear, not excitement, as I was diagnosed with Myelodysplastic Syndrome (MDS). After months of uncertainty, a 19-year-old stem cell donor saved my life with a perfect match, and I had a successful transplant on February 17, 2022.

Inspired by my journey, we created the Blood Tribute Car, painted red and named O+. This car honors blood donors and my stem cell donor, highlighting the importance of donation.

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Mollie Kallen

Not Every Story is a Horror Story

Mollie Kallen received a life-saving bone marrow transplant in the fall of 2023. Feel the need to be inspired? This blog will offer hope and assurance that you CAN get through it all and thrive. Meet Mollie and know that you are not alone.

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Ron Peperoni, Jr.

Taking Back My Life

By Ron Peperoni, Jr.

I just want to give everyone some hope. I was written off for dead by 40 doctors in 11 months. It was finally the 41st doctor to correctly diagnose me. In those 11 months, I had 266 doctor appointments, labs, scans, etc.

And I never gave up. I went from a healthy 31-year-old weighing 170 lbs. to 110 lbs. Just by luck I landed in my wonderful lymphoma doctor’s hands, and he threw the kitchen sink at me. I then had a bone marrow transplant in March 2012. Then I experienced horrible endless GVHD of the skin. I’ve had both hips and both shoulders, and all of my teeth replaced. My eyes don’t make tears, I had shingles, C. Diff. Colitis—the list goes on. It has been a very crazy 10 years.

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Changing Perspective on Numbers and Words

By Janet Walsh

Number and Word – neither are significant in and of themselves, right?  At least that is how I looked at them until March 11, 2022 when they took on significance in my life beyond my wildest imagination.

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Lauren Smith

Three Bone Marrow Transplants in One Family: A Struggle to Overcome the Impact of Cancer

By Lauren Smith

Ten years ago, our youngest son, Gabriel, had a bone marrow transplant due to being born with a rare disease, aplastic anemia. Immediately after he was born, we were flown to St. Louis to get treatment for him. We were blessed to have a 19-year-old donor from Germany. Overall, Gabriel did well with transplant.  A year and a half later, we discovered he had cataracts but otherwise he managed well.

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Lela Prewitt

Sharing the Road Less Traveled 

By Lela Prewitt

Those of us who’ve had a stem cell transplant and those who love and care for us are definitely on a road less traveled.  More than 50,000 stem cell transplants take place globally each year.  Just under 5,000 were reported in the US in 2021.  We’re in a bit of an exclusive club.

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Angela

Angela’s Answer to Remission: A CAR T-Cell  Therapy Success Story

By Angela Keith

In September of 2019, I was diagnosed with Appendix Cancer, which I have been told is very rare. So, at my six-month checkup in June 2021, I received the news through a medical portal that I had either leukemia or lymphoma. This was not the best way to find out you have cancer. I contacted my local oncologist to obtain additional information. The nurse then told me on the phone that they were meaning to call me about my PET scan results.

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Christine Musso Four-time Cancer Fighter

Christine Musso: Four Time Cancer Fighter and Teacher of Survivor Empowerment 

By: Jennifer Gillette, LMSW of nbmtLINK

I had the pleasure of chatting with Christine one afternoon after she reached out to us sharing a picture of her sister (BMT donor), daughter and herself sporting their GVHD awareness bracelets with pride. I was intrigued and wanted to learn more about her story as Christine shared that she was a 17-year survivor post-transplant. I am so glad we talked further as I know anyone on this journey would be inspired by her.

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Nuances of a New Normal (7 of 7)

By David Weinstein

David Weinstein shares his heart, grit, soul and bone marrow transplant journey with us in this 7-part series. Each blog post will inspire you regardless of where you are on your journey. So sit back and feel the sun on YOUR face as you soak up this very special series.

Read more »
David Weinstein

Nuances of a New Normal (6 of 7)

By David Weinstein

David Weinstein shares his heart, grit, soul and bone marrow transplant journey with us in this 7-part series. Each blog post will inspire you regardless of where you are on your journey. So sit back and feel the sun on YOUR face as you soak up this very special series.

Read more »

Nuances of a New Normal (5 of 7)

By David Weinstein

David Weinstein shares his heart, grit, soul and bone marrow transplant journey with us in this 7-part series. Each blog post will inspire you regardless of where you are on your journey. So sit back and feel the sun on YOUR face as you soak up this very special series.

Read more »

Nuances of a New Normal (4 of 7)

By David Weinstein

David Weinstein shares his heart, grit, soul and bone marrow transplant journey with us in this 7-part series. Each blog post will inspire you regardless of where you are on your journey. So sit back and feel the sun on YOUR face as you soak up this very special series.

Read more »

Nuances of a New Normal (3 of 7)

By David Weinstein

David Weinstein shares his heart, grit, soul and bone marrow transplant journey with us in this 7-part series. Each blog post will inspire you regardless of where you are on your journey. So sit back and feel the sun on YOUR face as you soak up this very special series.

Read more »

Nuances of a New Normal (2 of 7)

By David Weinstein

David Weinstein shares his heart, grit, soul and bone marrow transplant journey with us in this 7-part series. Each blog post will inspire you regardless of where you are on your journey. So sit back and feel the sun on YOUR face as you soak up this very special series.

Read more »

Nuances of a New Normal (1 of 7)

By David Weinstein

David Weinstein shares his heart, grit, soul and bone marrow transplant journey with us in this 7-part series. Each blog post will inspire you regardless of where you are on your journey. So sit back and feel the sun on YOUR face as you soak up this very special series.

Read more »