- Stem Cell Transplant Information and Support
- Alternative and Complementary Medicine
- Cancer Information and Support
- Caregiving Support
- Children's Programs and Services
- Clinical Trial Information
- Fertility
- Financial Assistance, Fundraising, & Insurance
- Disease Related Information - Anemia
- Foreign Language
- Disease Related Information - Immune Deficiency Disorders
- Disease Related Information - Leukemia & Lymphoma
- Disease Related Information - Multiple Myeloma
- Disease Related Information - Myeloproliferative Neoplasm
- Disease Related Information - Waldenstrom's Macroglobullinemia
- Disease Related Information - Paroxysmal Nocturnal Hemoglobinuria
- Stem Cell Donor Information Including Bone Marrow Peripheral Blood and Cord Blood
- Symptom Management
- Tools for Patients & Families
- Transportation
- Disease Related Information - Amyloidosis
Be The Match®/National Marrow Donor Program
www.BeTheMatch.org
Be the Match helps patients with leukemia, lymphoma and other diseases who need a marrow or umbilical cord blood transplant. Be The Match is operated by the National Marrow Donor Program, a nonprofit that matches patients with donors, educates health care professionals and conducts research so more lives can be saved. People can join the Be The Match Registry® – the largest listing of potential marrow donors and donated cord blood units – contribute financially and volunteer. Be The Match also provides support and resources for patients and their families before, during and after transplant.
ExploreBMT™
www.explorebmt.org
ExploreBMT™ represents the combined effort of many reputable, patient-focused organizations committed to helping patients who need access to transplant-related resources. This web site provides information and services to transplant patients.
Be The Match Educational Videos
As you or a loved consider or plan for a blood or marrow transplant (BMT), you may have a lot of questions. These short videos can help you learn what to expect before, during and after BMT. You’ll hear from patients and caregivers who’ve been through the process, along with transplant experts.
[/vc_column_text][vc_column_text]Resources for non-English speakers
Be The Match offers patient transplant information in several languages, including Spanish. Their free, translated resources can help non-English speaking patients feel informed and supported throughout the transplant process. They also have a bilingual (Spanish & English) patient services coordinator.
Access translated resources at: BeTheMatch.org/translations
[/vc_column_text][/vc_column_inner][vc_column_inner width=”1/3″][vc_column_text]American Society for Blood & Marrow Transplantation
(ASBMT)
http://www.asbmt.org/
Professional association of stem cell transplant physicians. Web site has evidence-based reviews and recommendations about optimal timing and type of transplant to treat patients with a variety of diseases.
Center for International Blood and Marrow Transplant Research (CIBMTR)
www.cibmtr.org
The Center for International Blood and Marrow Transplant Research (CIBMTR) was created to collaborate with the worldwide scientific community, to advance the fields of hematopoietic cell transplantation (HCT) and cellular therapy research. The organization facilitates important clinical research to increase survival and enrich the quality of life for thousands of HCT patients.
BMT-Support
http://www.bmtsupport.org/
Monitored Open online chat room for transplant patients and caregivers.
National Bone Marrow Transplant Link (nbmtLINK)
www.nbmtlink.org
The mission of the nbmtLink is to help patients, as well as their caregivers, families and the health care community, meet the many challenges of bone marrow/stem cell transplant by providing vital information and support services.
The Bone Marrow Foundation
The Bone Marrow Foundation is dedicated to improving the quality of life for bone marrow, stem cell, and cord blood transplant patients and their families by providing vital financial assistance, educational information, and emotional support programs.
[/vc_column_text][/vc_column_inner][vc_column_inner width=”1/3″][vc_column_text]BMT InfoNet
www.bmtinfonet.org
Since 1990, BMT InfoNet has provided quality information and emotional support to more than 100,000 transplant patients, survivors and their loved ones. Survivorship symposiums and a transplant center directory on the website are just some of the programs they provide.
Meredith A. Cowden Foundation
Presents an educational symposium for healthcare professionals and patients about chronic GVHD.
[/vc_column_text][/vc_column_inner][vc_column_inner width=”1/3″][vc_column_text]U. S. Dept. of Health & Human Services, Health Resources and Services Administration (HRSA)
bloodcell.transplant.hrsa.gov
Data on transplants performed at specific centers, transplants performed for specific diseases and survival data. Links to information about planning for transplant, finding a donor, being a donor and cord blood banking.
Bone Marrow Transplant Online Community
http://www.acor.org/
Online discussion group for transplant patients, survivors and their families. Select Bone Marrow Transplant under Online Communities on the home page.
BC Cancer Agency (Canada)
www.bccancer.bc.ca
The BC Cancer Agency is a part of the Provincial Health Services Authority of Canada. The Agency provides a province-wide, population-based cancer control program for the residents of British Columbia and the Yukon. The BC Cancer Agency’s mandate covers the spectrum of cancer care, from prevention and screening, to diagnosis, treatment, and through to rehabilitation. The BC Cancer Agency works to reduce the incidence of cancer, to reduce the mortality rate of people with cancer, and to improve the quality of life of people living with cancer.
HerbMed
www.herbmed.org
HerbMed® is an interactive, electronic herbal database that provides hyperlinked access to the scientific data underlying the use of herbs for health. It is information resource provided by the nonprofit Alternative Medicine Foundation, Inc. The organization provides a free database and a more extensive version available for a paid subscription.
National Center for Complimentary and Alternative Medicine
www.nccam.nih.gov
The National Center for Complementary and Alternative Medicine (NCCAM) is 1 of the 27 institutes and centers that make up the National Institutes of Health (NIH).
National Institute of Health Office of Dietary Supplements
http://dietary-supplements.info.nih.gov
The mission of ODS is to strengthen knowledge and understanding of dietary supplements by evaluating scientific information, stimulating and supporting research, disseminating research results, and educating the public to foster an enhanced quality of life and health for the U.S. population.
Office of Cancer Complementary and Alternative Medicine
http://cancer.gov/cam/index.html
The Office of Cancer Complementary and Alternative Medicine (OCCAM) was established in October 1998 to coordinate and enhance the activities of the National Cancer Institute (NCI) in the arena of complementary and alternative medicine (CAM).
4th Angel Mentoring
www.4thangel.org
The 4th Angel Mentoring Program is a national, free, non-profit organization that looks to enhance the experience of cancer survivorship by reducing stress during diagnosis and treatment. We accomplish this goal by matching patients and caregivers with a trained volunteer who is a cancer survivor or caregiver.
American Cancer Society
www.cancer.org
The American Cancer Society (ACS) is a nationwide, community-based voluntary health organization, dedicated to eliminating cancer as a major health problem.
CancerCare, Inc.
www.cancercare.org
CancerCare is a national non-profit organization that provides free professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved.
Cancer Support Community
www.cancersupportcommunity.org
In 2009, Gilda’s Club Worldwide and The Wellness Community combined to form the Cancer Support Community. The mission of CSC is to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.
ACOR – Association of Cancer Online Resources
www.acor.org
ACOR is an Internet-based public charity dedicated to improve the quality of care provided to cancer patients and the quality of life of patients, survivors and their caregivers.
Imerman Angels
www.imermanangels.org
1-to-1 cancer support connecting those going through cancer and caregivers to someone who has been through a similar cancer experience.
National Cancer Institute
www.cancer.gov
The NCI, at the National Institutes of Health, established under the National Cancer Act of 1937, is the Federal Government’s principal agency for cancer research and training. They conduct and support research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and their families.
OncoLink
www.oncolink.com
OncoLink was founded in 1994 by Penn cancer specialists with a mission to help cancer patients, families, health care professionals and the general public get accurate cancer-related information at no charge.
Cancer.net
www.cancer.net
Cancer.Net provides timely, comprehensive, oncologist-approved information from the American Society of Clinical Oncology (ASCO), with support from the Conquer Cancer Foundation. Cancer.Net brings the expertise and resources of ASCO to people living with cancer and those who care for and about them to help patients and families make informed health care decisions.
Coping With Cancer Magazine
www.copingmag.com
Coping® With Cancer is America’s consumer magazine for people whose lives have been touched by cancer™. Now in its 19th year of providing knowledge, hope and inspiration, its readers include cancer patients (survivors) and their families, caregivers, healthcare teams and support group leaders.
Cancer and Careers
www.cancerandcareers.org
Cancer and Careers empowers and educates people with cancer to thrive in their workplace, by providing expert advice, interactive tools and educational events.
National Coalition for Cancer Survivorship
www.canceradvocacy.org
The National Coalition for Cancer Survivorship is the oldest survivor-led cancer advocacy organization in the country and a highly respected authentic voice at the federal level, advocating for quality cancer care for all Americans and empowering cancer survivors.
Cure Magazine
www.curetoday.com
CURE: Cancer Updates‚ Research & Education is a quarterly magazine that combines the science and humanity of cancer for those who have to deal with it on a daily basis. CURE provides scientific information in easy-to-understand language with equally understandable illustrations. It is published by CURE Media Group, LP.
Healthline Cancer Learning Center
www.healthline.com/channel/cancer.html
Healthline Networks offers original health content through HealthExpert Health Forums, as well as physician-reviewed content, health tools and videos from more than 20 leading medical reference publishers and media partners, including A.D.A.M., GALE Cengage Learning, Cerner Multum, NBC Universal, StayWell, Harvard Health Publications, and Reed Elsevier.
LIVESTRONG Foundation
www.livestrong.org
The LIVESTRONG Foundation is an organization focused on helping patients and families get the personalized care they need at the time they need it most. They provide information and resources on different cancer types, the physical and emotional needs and concerns of those affected by cancer and how to live the life you want to live after a cancer diagnosis.
National Comprehensive Cancer Network (NCCN)
www.nccn.org/patients
NCCN is a not- for-profit alliance of 25 of the world’s leading cancer centers. NCCN develops resources that aim to assist patients and their caregivers with overcoming the challenges related to cancer.
Vital Options International
www.vitaloptions.org
Vital Options® International TeleSupport® Cancer Networkis a not-for-profit cancer communications, support and advocacy organization whose mission is to facilitate a global cancer dialogue by using communications technology to reach every person touched by cancer.
Women’s Cancer Resource Center
www.wcrc.org
To empower women with cancer to be active and informed consumers and survivors; to provide community for women with cancer and their supporters; to educate the general community about cancer; and to be actively involved in the struggle for a life-affirming, cancer-free society.
Cancer Hope Network
www.cancerhopenetwork.org
Cancer Hope Network is a not-for-profit organization that provides free and confidential one-on-one support to cancer patients and their families. We provide that support by matching cancer patients and/or family members with trained volunteers who have themselves undergone and recovered from a similar cancer experience.
Family Caregivers Alliance
www.caregiver.org
FCA is a public voice for caregivers, illuminating the daily challenges they face, offering them the assistance they so desperately need and deserve, and championing their cause through education, services, research and advocacy.
Family Voices
www.familyvoices.org
Family Voices is a national, grassroots clearinghouse for information and education concerning the health care of children with special health needs.
Friends’ Health Connection
www.friendshealthconnection.org
Friends’ Health Connection is a nonprofit 501(c)(3) organization that connects people who are currently experiencing or who have overcome the same disease, illness, handicap or injury in order to communicate for mutual support.
Lotsa Helping Hands
www.lotsahelpinghands.com
Lotsa Helping Hands is a free World Wide Web service that makes it easy to help loved ones in need. It’s an easy-to-use, private group calendar, specifically designed for organizing helpers, where everyone can pitch in with meals delivery, rides, and other tasks necessary for life to run smoothly during a crisis. Needs are posted on a personalized web site, where the group calendar is automatically updated, and members sign up to help.
National Alliance for Caregiving
www.caregiving.org
Recognizing that family caregivers provide important societal and financial contributions toward maintaining the well-being of those they care for, the Alliance’s mission is to be the objective national resource on family caregiving with the goal of improving the quality of life for families and care recipients.
Caregiver Action Network
www.caregiveraction.org
Formerly, The National Family Caregivers Association, supports, empowers, educates, and speaks up for the more than 50 million Americans who care for a chronically ill, aged, or disabled loved one. They reach across the boundaries of different diagnoses, different relationships and different life stages to address the common needs and concerns of all family caregivers.
National Respite Locator Service
www.respitelocator.org
The Chapel Hill Training-Outreach Project, Inc. (CHTOP) is a national provider of training and technical assistance services, and audiovisual and print materials, as well as a provider of direct services to families and children such as Head Start.
Rosalynn Carter Institute
www.rosalynncarter.org
Through research, education, and training, the RCI promotes the mental health and well-being of individuals, families, and professional caregivers; promulgates effective caregiving practices; builds public awareness of caregiving needs; and advances public and social policies that enhance caring communities..
Strength for Caring
www.strengthforcaring.com
Strength for Caring is an online resource and community for family caregivers. Strength for Caring helps family caregivers take care of their loved ones and themselves. Strength for Caring is part of The Caregiver Initiative, created by Johnson & Johnson Consumer Products Company, Division of Johnson & Johnson Consumer Companies, Inc.
Today’s Caregiver Magazine
www.caregiver.com
Caregiver Media Group is a leading provider of information, support and guidance for family and professional caregivers.
Well Spouse Foundation
www.wellspouse.org
Well Spouse is a national, not for profit membership organization which gives support to wives, husbands, and partners of the chronically ill and/or disabled.
American Childhood Cancer Organization
www.acco.org
American Childhood Cancer Organization’s mission is to address the needs of families through programs that emphasize information, advocacy, awareness, and research. Founded in 1970, ACCO is one of the largest grassroots, national organizations dedicated to improving the lives of children and adolescents with cancer and their families.
CureSearch
http://www.curesearch.org/
CureSearch unites the world’s largest childhood cancer research organization, the Children’s Oncology Group, and the National Childhood Cancer Foundation through our shared mission to cure childhood cancer. Research is the key to a cure.
TeensLivingWithCancer.org
www.teenslivingwithcancer.org
Teens Living With Cancer is a project of Melissa’s Living Legacy Teen Cancer Foundation, who is now called 13thirty Cancer Connect.
Children’s Leukemia Foundation of Michigan (Michigan Residents)
www.leukemiamichigan.org
The mission of Children’s Leukemia Foundation of Michigan is to provide and promote compassionate, personalized support to people in Michigan affected by leukemia and other related disorders.
Children’s Leukemia Research Association, Inc.
www.childrensleukemia.org
The Children’s Leukemia Research Association, Inc., also known as the National Leukemia Research Association, was founded in 1965 as a not-for-profit organization dedicated to raising funds to support research efforts towards finding the causes and cure for Leukemia.
Children’s Organ Transplant Association (COTA)
www.cota.org
The Children’s Organ Transplant Association provides fundraising assistance for children and young adults needing life-saving transplants and promotes organ, marrow and tissue donation.
Group Loop-Online Support for Teens with Cancer
www.grouploop.org
Group Loop is a safe place for teens with cancer and their parents to build an online community to find support, education and hope when dealing with a cancer diagnosis.
Alex’s Lemonade Stand Foundation
www.alexslemonade.org
SuperSibs! Program is now part of Alex’s Lemonade Stand Foundation. The goal is to reach out to brothers and sisters of over 10,000 children who are diagnosed with cancer each year.
Kids Konnected
www.kidskonnected.org
The original Kids Konnected was formed in 1993 as Komen Kids by then ll year old Jon Wagner-Holtz after his mother was treated for breast cancer. At that time there were no programs where Jon could talk to other kids that knew what it was like to have a sick parent. So Jon decided to change things by starting his own hotline to help other kids going through similar situations. And that’s how Kids Konnected got started!
The National Children’s Cancer Society
http://www.thenccs.org/
The mission of The National Children’s Cancer Society is to improve the quality of life for children with cancer by promoting children’s health through financial and in-kind assistance, advocacy, support services, and education.
Starlight Children’s Foundation
www.starlight.org
The Starlight Children’s Foundation partners with experts to improve the life and health of kids and families around the world.
Center Watch Clinical Trials Listing Service
www.centerwatch.com
CenterWatch is a Boston-based publishing and information services company and a business of The Thomson Corporation. We provide information services used by patients, pharmaceutical, biotechnology and medical device companies, CROs and research centers involved in clinical research around the world.
Coalition of National Cancer Cooperative Groups, Inc.
www.cancertrialshelp.org
The Coalition of Cancer Cooperative Groups, Inc. is the nation’s premier network of cancer clinical trials specialists. Our members include cooperative groups, cancer centers, academic medical centers, community hospitals, physician practices, and patient advocate groups. Together, they represent the interests of more than 17,000 cancer investigators, hundreds of patient advocates, and thousands of patients worldwide.
Coping: Association of Cancer Online Resources Listserv
http://listserv.acor.org
The ACOR Mailing List Center currently offers more than 130 public online information and support mailing lists providing a unique group of empowering communities to more than 75,000 patients, caregivers or anyone looking for answers about cancer and related disorders.
Jason Carter Clinical Trials Program
www.jcctp.org
The Jason Carter Clinical Trials Program was created to help patients with blood cancers or blood disorders and their families find and join clinical trials. We provide one-on-one telephone support to help patients and families navigate their clinical trial search, an easy-to-use, web-based search tool to find relevant clinical trials, and educational resources for patients and families to learn about cancer treatment options and clinical trials.
National Cancer Institute
www.cancer.gov/about-cancer/
NCI has an important role to play in the drug development process in the United States. From its expansive clinical trials program to the drug discovery research it performs and funds, the institute believes it has an essential duty to expedite the discovery and development of interventions that will save lives.
National Institutes of Health
www.clinicaltrials.gov
ClinicalTrials.gov provides regularly updated information about federally and privately supported clinical research in human volunteers. ClinicalTrials.gov gives you information about a trial’s purpose, who may participate, locations, and phone numbers for more details. The information provided on ClinicalTrials.gov should be used in conjunction with advice from health care professionals.
American Association of Tissue Banks
www.aatb.org
The American Association of Tissue Banks (AATB) is a scientific, not-for-profit, peer group organization founded in 1976 to facilitate the provision of transplantable cells and tissues of uniform high quality in quantities sufficient to meet national needs.
American Society for Reproductive Medicine
www.asrm.org
The Vision of the American Society for Reproductive Medicine (ASRM) is to be the nationally and internationally recognized leader for multidisciplinary information, education, advocacy and standards in the field of reproductive medicine.
Fertile Hope
www.fertilehope.org
Founded in October 2001, Fertile Hope is a national nonprofit organization dedicated to providing reproductive information, support and hope to cancer patients whose medical treatments present the risk of infertility.
Genetics and IVF Institute
www.givf.com
The Genetics & IVF Institute is the world’s largest, fully integrated, specialized provider of infertility treatment and genetic services, and is widely respected for its excellence, innovation, integrity, and total commitment to each and every patient.
Resolve: The National Infertility Association
www.resolve.org
We are a dynamic, 31-year-old organization dedicated to providing you the education, advocacy, and support you need to face the disease of infertility.
Pharmaceutical Research Manufacturers of America
www.pparx.org
The Partnership for Prescription Assistance brings together America’s pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that’s right for them.
America’s Health Insurance Plans
www.ahip.org
AHIP is the national trade association representing the health insurance industry, companies providing health insurance coverage to more that 200 million Americans.
CancerCare Co-Payment Assistance Foundation
www.cancercarecopay.org/
The CancerCare Co-Payment Assistance Foundation is a not-for-profit organization established in 2007 to address the needs of individuals who cannot afford their insurance co-payments to cover the cost of medications for treating cancer.
Children’s Organ Transplant Association (COTA)
www.cota.org
The Children’s Organ Transplant Association (COTA) exists to assist patients who require a life-saving organ, bone marrow, cord blood or stem cell transplant. We work with any patient who needs a transplant due to a genetic disease such as Cystic Fibrosis, and all patients 21 and younger for any disease or complication.
Dean Randazzo Cancer Foundation
www.deanrandazzocancerfoundation.org
The foundation’s purpose is to raise money for cancer research and awareness and assist individuals battling cancer both financially and emotionally. To date, they have donated over $100,000.00 to worthy beneficiaries who fit these criteria.
HelpHOPELive
(Formerly National Transplant Assistance Fund)
www.HelpHOPELive.org
NTAF has over 20 years experience empowering you to raise money in your communities to cover uninsured medical expenses related to transplantation and catastrophic injury.
Medicare Rights Center
www.medicarerights.org
Medicare Rights Center (MRC) is the largest independent source of health care information and assistance in the United States for people with Medicare. Founded in 1989, MRC helps older adults and people with disabilities get good, affordable health care.
Medicare Rights Center
www.medicarerights.org
Medicare Rights Center (MRC) is the largest independent source of health care information and assistance in the United States for people with Medicare. Founded in 1989, MRC helps older adults and people with disabilities get good, affordable health care.
National Association of Hospital Hospitality Houses
www.nahhh.org
The National Association of Hospital Hospitality Houses, Inc. is a non-profit corporation serving facilities that provide lodging and other supportive services to patients and their families when confronted with medical emergencies. Each facility assures that a homelike environment is provided to persons who must travel to be with a patient or to receive necessary outpatient care.
National Foundation for Transplants
www.transplants.org
NFT provides financial assistance to transplant candidates and recipients when they face major transplant-related costs not covered by insurance. NFT provides assistance based on a patient’s financial need and on the availability of funds. Funds come from NFT campaigns conducted by local volunteers in honor of a patient in their community. NFT also advocates on behalf of patients in negotiating bills.
Needy Meds
www.needymeds.com
Provides current information on drug assistance programs including requirements and applications forms; discount drug cards; and disease-based assistance programs.
Partnership for Prescription Assistance
www.pparx.org
The Partnership for Prescription Assistance brings together America’s pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that’s right for them.
Patient Advocate Foundation
www.patientadvocate.org
Patient Advocate Foundation is a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.
Ticket to Work
www.yourtickettowork.com
The Ticket to Work and Self-Sufficiency Program is an employment program for people with disabilities who are interested in going to work.
GiveForward
www.giveforward.com
GiveForward is the first place to turn when you or somone you love is facing a challenge. It’s the central rallying place for giving and receiving meaningful support. From sending a simple “thinking of you” to raising money for out-of-pocket expenses, GiveForward empowers anyone to build a community and take action when it counts.
Aplastic Anemia & Myelodysplatic Syndrome (MDS) International Foundation, Inc.
www.aamds.org
The Aplastic Anemia & MDS International Foundation is the oldest and largest patient advocate and support organization for bone marrow diseases, providing life-saving hope, knowledge, and support to hundreds of thousands of patients and their families around the world.
Fanconi Anemia Research Fund, Inc.
www.fanconi.org
Our Mission: To find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide.
Women’s Cancer Network
www.wcn.org
The mission of the Women’s Cancer Network is to keep women informed and to enable them to be their own health advocates. The Gynecologic Cancer Foundation (GCF) and CancerSource have developed the Women’s Cancer Network with an unrestricted educational grant provided by Bristol-Myers Squibb Oncology.
ACS: Informacion de referencia sobre el cancer
www.cancer.org/docroot/esp/esp_0.asp
Aprenda sobre los distintos tipos de cáncer, los factores de riesgo, la prevención, el tratamiento y más. Haga clic en “Sign In” que se encuentra en la esquina superior derecha de la pantalla para suscribirse a la página. Después seleccione “Spanish” como idioma preferido, para obtener fácil acceso a los documentos en español. Los formularios de suscripción están en inglés.
Cancer.gov – Algunos documentos especificos estan en espanol
[/vc_column_text][/vc_column_inner][vc_column_inner width=”1/3″][vc_column_text]Espanol-healthfinder
http://healthfinder.gov/espanol
healthfinder® español contiene fuentes de información seleccionadas en español que le pueden servir de guía para tomar decisiones con relación a su salud. Para comenzar su búsqueda, ingrese en el cuadro de búsqueda anterior el texto que desea investigar o escoja uno de los tema listados a continuación.
Institutos Nacionales de la Salud
http://salud.nih.gov
MedlinePlus Información de salud para usted.
Immune Deficiency Foundation
www.primaryimmune.org
The Immune Deficiency Foundation (IDF) is the national non-profit health organization dedicated to improving the diagnosis and treatment of primary immune deficiency diseases through research and education.
The Leukemia & Lymphoma Society
www.lymphoma.org
The Leukemia & Lymphoma Society is the world’s largest voluntary health organization dedicated to funding blood cancer research, education and patient services. The Society’s mission: Cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families. Since its founding in 1949, the Society has invested more than $424 million for research specifically targeting blood cancers.
Leukemia Research Foundation
www.leukemia-research.org
Illinois Residents or those within a 100-mile radius of Chicago.
Lymphoma Help
http://www.lymphomahelp.com/
Tap into free resources, information, and support at LymphomaHelp.com – a partnership of trusted lymphoma organizations in the U.S.
Lymphoma Research Foundation
www.lymphoma.org
Our Mission: To conquer leukemia, lymphoma, and myelodysplastic syndromes by funding research into their causes and cures, and to enrich the quality of life of those touched by these diseases.
Patients Against Lymphoma
www.lymphomation.org
Providing support and evidence-based resources, independent of health industry funding.
International Myeloma Foundation
www.myeloma.org
The IMF is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure.
Multiple Myeloma Research Foundation
www.multiplemyeloma.org
The Multiple Myeloma Research Foundation (MMRF) was founded in 1998 by twin sisters Karen Andrews and Kathy Giusti following Kathy’s diagnosis with multiple myeloma. Today, the MMRF is the world’s number one private funder of myeloma specific research.
MyMPNConnect
www.mpnconnect.com
This Web site has information to help people living with a myeloproliferative neoplasm (MPN), their family, caregivers, friends and other members of the community. Sometimes a myeloproliferative neoplasm is also called a “blood cancer,” “bone marrow cancer” or “bone marrow disorder,” because blood cells are made in your bone marrow.
International Waldenstrom’s Macroglobullinemia Foundation
www.iwmf.com
The IWMF began in 1994, when Arnold Smokler, a retired pharmacist, was diagnosed with WM. Finding little available information and no organized support groups, he formed the Waldenstrom’s Macroglobulinemia Support Group (WMSG). The organization gradually grew, and in 1998 was incorporated in the State of Florida under its new name, International Waldenstrom’s Macroglobulinemia Foundation as a non-profit corporation.
The PNH Research and Support Foundation
www.pnhfoundation.org
The PNH Research and Support Foundation is dedicated to funding research to find a cure and new treatments for PNH disease and to helping U.S. PNH patients in need with funding (up to $3,000) for disease-related expenses not covered by insurance..
Asians for Miracle Marrow Matches (A3M)
www.asianmarrow.org
Asians for Miracle Marrow Matches is committed to the improvement of the health and welfare of all people by providing education, assistance, and facilitating prompt access to potential marrow/stem cell donors. We are dedicated to offering hope to the thousands suffering from diseases, which are treatable by stem cell transplant.
Be The Match®
www.BeTheMatch.org
Be The Match offers you the unique opportunity to help a patient in need by donating bone marrow or umbilical cord blood. Thousands of patients with leukemia and other life-threatening diseases depend on the Be The Match Registry to find a match. We all have the power to help, the power to change a life.
Consumer Affairs
www.consumeraffairs.com/health/cord-blood/#how-it-works
Consumer Affairs’ cord blood banking video provides information for expectant parents on how the cord blood collection process actually works. Today, cord blood stem cells are used in the treatment of nearly diseases, including a wide range if cancers, genetic diseases, and blood disorders.
Cryobanks International
www.cryo-intl.com
Cryobanks International is a leader in the collection, processing and banking of umbilical cord blood stem cells.
Delete Blood Cancer DKMS
www.deletebloodcancer.org
The Delete Blood Cancer DKMS mission is to save lives by recruiting bone marrow donors for leukemia patients. More than 17,000 of our donors have helped save lives by donating their bone marrow. DKMS is the largest and most experienced bone marrow donor center in the world with close to 2 million registered donors.
Gift of Life Bone Marrow Foundation
www.giftoflife.org
The Gift of Life Bone Marrow Foundation is an affiliate registry of the National Marrow Donor Program that specializes in increasing ethnic diversity of the donor pool through recruitment in the Jewish community. The organization was established in 1991 during the highly publicized donor search for Jay Feinberg, who received his transplant in 1995 and now serves as its Executive Director. Today, Gift of Life manages a registry of over 100,000 marrow donors and a growing bank of umbilical cord blood units.
HLA Registry
A Division of Community Blood Services
www.communitybloodservices.org
Community Blood Services is a blood bank that collects blood donations, and offers cord blood banking and bone marrow registration and donations. Founded in 1953, Community Blood Services is a not-for-profit organization devoted to serving the community’s transfusion medicine needs.
Kashi Clinical Laboratories
www.bonemarrowtest.com
BoneMarrowTest.com provides testing resources for patients who need stem cells from bone marrow, peripheral blood cells or umbilical cord blood.
Love Hope Strength Foundation
www.lovehopestrength.org
The Love Hope Strength Foundation is now firmly established as the world’s leading rock and roll cancer foundation. They have been endeavoring to encourage as many people as possible to sign up for the International Bone Marrow Registry. All of their registrations are included in the National Marrow Donor Program (NMDP).
New York Blood Center
www.nybloodcenter.org
New York Blood Center has provided our community with the highest quality transfusion products and services, as well as leading-edge research, technological and medical care innovation, and education in the field of transfusion medicine.
Parent’s Guide to Cord Blood Foundation
www.parentsguidecordblood.org
Cord blood banking or donation information; therapies using cord blood.
BostonSight PROSE Provider Network
www.bostonsight.org/PROSE
PROSE, which stands for “prosthetic replacement of the ocular surface ecosystem,” protects and enables vision by replacing or supporting damaged ocular surface system functions.
Cancer Nutrition Network for Texans
www.utmb.edu/nsights/patient_information.htm
The Cancer Nutrition Network for Texans (CNNT) Project is a statewide initiative of the Texas Tech University Health Sciences Center Department of Family Medicine, the CPRIT Council, and community partners who are dedicated to helping meet the nutritional support needs of cancer patients and their principal caregivers.
Look Good…Feel Better
www.lookgoodfeelbetter.org
LGFB group programs are offered nationwide in hospitals and other community settings. In these sessions, LGFB trained volunteer cosmetologists teach women how to cope with skin changes and hair loss using cosmetics and skin care products donated by the cosmetic industry. Group programs and other services for women are offered in all 50 states and the District of Columbia. (International LGFB programs are also offered by our sister organizations.)
National Lymphedema Network
www.lymphnet.org
The National Lymphedema Network (NLN) is an internationally recognized non-profit organization founded in 1988 to provide education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema.
The Neuropathy Association
www.neuropathy.org
Provides support and education, advocates for patients’ interests, and promotes research into the causes of and cures for peripheral neuropathy.
CaringBridge™
www.caringbridge.org
CaringBridge™ is a nonprofit 501(c)(3) organization offering free personalized Web sites to those wishing to stay in touch with family and friends during significant life events. Our mission is to bring together a global community of care powered by the love of family and friends in an easy, accessible and private way.
MyMedSchedule
www.MyMedSchedule.com
Create your own free printable medication chart to clearly show what times you should take each of your medications or supplements, and how many to take. There are pictures of your pills so they are easy to identify…no mistakes! Create and revise medication lists for yourself, your friends and family members. There is an email and text reminder feature to “take your pills” and a prescription refill reminder too. MyMedSchedule is totally free, secure and private.
Smart Patients
www.smartpatients.com
An Online community where patients and caregivers learn from each other. GVHD is one of many groups.
Air Care Alliance
www.aircareall.org
The Air Care Alliance is a nationwide league of humanitarian flying organizations whose volunteer pilots are dedicated to community service. This ACA site will introduce you to us and to all the groups we list whose volunteers perform public benefit flying for health care, patient transport, disaster relief, environmental support, and other missions of public service.
Angel Flight
http://www.angelflight.com/
Angel Flight was created by a group of pilots who believe in the benefit of volunteering. We will arrange free air transportation for any legitimate, charitable, medically related need. This service is available to individuals, and health care organizations. We will also arrange transportation of those people who are financially distressed, or who are in a time-critical, non-emergency situation due to their medical condition.
Corporate Angel Network
www.corpangelnetwork.org
Corporate Angel Network is the only charitable organization in the USA whose sole mission is to ease the emotional stress, physical discomfort and financial burden of travel for cancer patients by arranging free flights to treatment centers, using the empty seats on corporate aircraft flying on routine business.
National Patient Travel Center
www.patienttravel.org
The National Patient Travel Helpline provides information about all forms of charitable, long-distance medical air transportation and provides referrals to all appropriate sources of help available in the national charitable medical air transportation network. Our Goal is “….to ensure that no financially-needy patient is denied access to distant specialized medical evaluation, diagnosis or treatment for lack of a means of medical air transportation.”
Patient Airlift Services (PALS)
www.palservices.org
Patient Airlift Services arranges volunteer medical flights and free air transportation for needy individuals throughout the greater Northeast region, from Virginia to Maine, Ohio to Massachusetts.
Amyloidosis Support Network
www.amyloidosis.org
The Amyloidosis Support Network is committed to improving the survivability and quality of life of patients. We do so by linking those affected by amyloidosis to experienced medical and emotional support resources and promoting awareness among the public and professionals so that the disease can be recognized earlier and appropriately treated.
