was successfully added to your cart.

Not Every Story is a Horror Story

Facebook
Twitter
LinkedIn

By Mollie Kallen

Hello and if you are reading this then you’ve either been diagnosed or have a family member that is dealing with this diagnosis.  Mine was acute myeloid leukemia (AML) and it came completely out of the blue.  Absolutely NO SYMPTOMS whatsoever and I was busy with my life; traveling and working and being a mom to my 15 year-old.  My diagnosis was found through routine bloodwork, which showed low white blood cells (WBC) and even the doctors were incredulous given my presentation. 

Mollie Kallen

I biked 40 minutes the day before I went into the hospital for my initial two rounds of chemo.  After watching me for many weeks, they decided to do a bone marrow biopsy and that was the beginning of a crazy/scary/life changing ride in April of 2023. 

Why I’m writing this is to let you know that not everyone’s story is a horror story; mine went pretty smoothly and I know many others with the same experience.  I’m going to write a book about my transformation as I feel there are so many things that people should know about a transplant that we’re never told or learn except by experiencing it. 

I did what everyone probably does at first – google and boy was that a mistake.  My team told me not to and I didn’t listen and that caused a lot of unnecessary fear. Every case is unique, and every person is different so the internet is NOT your friend.

I then searched to find others who have been through this experience to speak with but that also left me scared and worried.  I spoke to a few people, and it seemed that almost everyone had complications ( which can happen).  I went through lots of chemo and then had a bone marrow transplant in October 2023 and have been doing great ever since!  I’m back to almost all of my normal activities and thankfully no complications.  I have joined to be a coach to help others and spread the word that not all experiences are horrific.  Of course, treatment had its moments and was challenging, but I maintained a great walking routine even when in the hospital and really feel that this was a key to a quicker recovery.  I am happy to speak to anyone about my experience and offer any tips that I can provide.  It can be a scary diagnosis and it’s so important to have a village of friends/family to help you through as well as a good medical team that communicates with you every step of the way.

More to explore

Be the Match connected a Seattle man with donor in Germany

By Bonnie Rochman
Reposted with permission from the Fred Hutch News Service

When Rich Hurst was diagnosed with aggressive leukemia, his only hope lay in a stem cell transplant from a stranger thousands of miles away. Selina Rüecker, a young woman in Germany, answered the call, donating her stem cells and giving Rich a second chance. Two years later, the pair met in person for the first time, sharing an emotional reunion that underscored their remarkable connection.

Read More »

Racing to Raise Awareness

By Beth Ades

Building a race car is our “garage therapy,” where family and friends come together. The 2021 season started with fear, not excitement, as I was diagnosed with Myelodysplastic Syndrome (MDS). After months of uncertainty, a 19-year-old stem cell donor saved my life with a perfect match, and I had a successful transplant on February 17, 2022.

Inspired by my journey, we created the Blood Tribute Car, painted red and named O+. This car honors blood donors and my stem cell donor, highlighting the importance of donation.

Read More »

Taking Back My Life

By Ron Peperoni, Jr.

I just want to give everyone some hope. I was written off for dead by 40 doctors in 11 months. It was finally the 41st doctor to correctly diagnose me. In those 11 months, I had 266 doctor appointments, labs, scans, etc.

And I never gave up. I went from a healthy 31-year-old weighing 170 lbs. to 110 lbs. Just by luck I landed in my wonderful lymphoma doctor’s hands, and he threw the kitchen sink at me. I then had a bone marrow transplant in March 2012. Then I experienced horrible endless GVHD of the skin. I’ve had both hips and both shoulders, and all of my teeth replaced. My eyes don’t make tears, I had shingles, C. Diff. Colitis—the list goes on. It has been a very crazy 10 years.

Read More »