Bridging Research and Reality with Meredith Cowden: Understanding the Impact of Chronic GVHD on Patients and Caregivers

This month’s special call-in program will feature Meredith Cowden, a longtime survivor who still experiences chronic Graft-versus-Host Disease (cGVHD). Meredith will share her personal journey as well as summarize a recent study she co-authored, along with an impressive group of doctors and clinicians in the cGVHD space. The study is featured in an article, “Impact of Chronic Graft-versus-Host Disease on Patient and Caregiver Experiences in the United States: A Retrospective Social Media Analysis.” This analysis used social media listening to analyze more than 12,000 posts from patients and caregivers living with chronic GVHD — capturing the kind of unfiltered, realworld experience that clinical trials rarely reach. What emerged was both validating and sobering—there were four themes that rose to the surface and Meredith will share all of this, including the profound physical, mental, and emotional burden of the disease. The noteworthy impact on caregivers will also be shared. Jennifer Gillette, our licensed staff social worker, will host this call. There will be plenty of time for live questions.

If you have any technical issues related to registering, please email peggyburkhard@nbmtlink.org or call (248) 770-5172. The call-in information is contained in the form you use to register.

Note: You call in to participate. (We do not call you.)

This FREE program is intended to provide psychosocial and emotional support along with health information from national experts regarding critical topics surrounding cancer and treatments.