Resources & Support

The National Bone Marrow Transplant Link is dedicated to helping individuals and their families from diagnosis through survivorship. We work with hospitals, cancer centers, and other organizations to reinforce and complement medical care.

The nbmtLINK offers a number of unique resources to meet your needs:

  • Graft Versus Host Disease: Living with the After Effects of Bone Marrow/Stem Cell Transplant
  • Bone Marrow/Stem Cell Transplant Frequently Asked Questions-Helpful Information for Patients, Caregivers and Families
  • Survivorship Guide for Bone Marrow/Stem Cell Transplant, Coping with Late Effects
  • Caregivers’ Guide for Bone Marrow/Stem Cell Transplant, Practical Perspectives
  • Voices of Hope & Healing for Bone Marrow/Stem Cell Transplant
  • Connect and Color Together Coloring Book
  • Resource Guide of Helpful Organizations for the Bone Marrow and Stem Cell Transplant Community
  • Guide to Bone Marrow and Stem Cell Transplant (English or Spanish version)
  • DVD: The New Normal (also available on YouTube)
  • nbmtLINK 2 GB USB Flashdrive
  • Gathering Stones One Woman’s Personal Journey through Cancer

Select publications are available online for you to read, download, or print out for free. If you would like hard copies, you may order any of the booklets for a small charge. Our webcasts contain helpful information on topics such as caregiving for a bone marrow transplant patient and chronic Graft Versus Host Disease in children and adults. If you still have not found the information you need, please feel free to contact our staff with any questions.

Resources & Support

Support

The National Bone Marrow Transplant Link offers and promotes a number of supportive programs and services for bone marrow transplant patients and their families:


Telephone Education and Support Group for
Bone Marrow/Stem Cell Transplant Survivors:
Coping with Chronic Graft versus Host Disease

  • Facilitated by Sandra Mitchell, PhD, CRNP, AOCN from the National Institutes of Health
  • Four Week Sessions for 8-10 Survivors
  • Groups are held twice a year in spring and fall, call for dates
  • No charge for participation

Week 1: Overview of Chronic Graft versus Host Disease
Week 2: Understanding and Living with Chronic Graft versus Host Disease
Week 3: Exploring Options for Improving Health and Well-Being
Week 4: Facing Forward: Developing Your Personal Plan for Managing Chronic Graft versus Host Disease and Living Well

For additional information or to register, please call:
Peggy Burkhard at 800-LINK-BMT (800-546-5268) or email: peggyburkhard@nbmtlink.org

Sponsored by the National Bone Marrow Transplant Link with support from The Leukemia & Lymphoma Society, Pharmacyclics, Janssen, Incyte, and the Meredith A. Cowden Foundation.


Celebrate Your Second Birthday!

Contact the nbmtLINK at info@nbmtlink to receive a specially designed card that recognizes you and your caregiver on your transplant anniversary. Since survivorship issues, both physical and emotional, often continue for years after transplant, this program focuses attention on the ongoing needs of BMT survivors and their caregivers, creating a community that understands the importance of this “second birthday.” If you or someone you love would like to be recognized, please contact Cindy Burke at 800-546-5268 or email cindyburke@nbmtlink.org


Reassurance, Understanding, and Support when you
need them the most.

“Peer Support on Call Program” is a free service offered by the National Bone Marrow Transplant Link. Emotional support is available through one-on-one conversations with trained peer support volunteers who are bone marrow/stem cell transplant survivors, caregivers and marrow donors. Since they have been through the transplant experience themselves, they understand the patient’s and caregiver’s feelings and can provide an empathetic point of view. For patients and caregivers, peer support is only a phone call away. If you would like to request a phone call from a peer support volunteer, please click here or call our office at 800-LINK-BMT (800-546-5268).