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Category Archives: Webinar

October 25, 2023
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Improving Life for Patients with cGVHD with a Focus on Lung Issues, Psychosocial Support, a Personal Perspective and More

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Improving Life for Patients with cGVHD with a Focus on Lung Issues, Psychosocial Support, a Personal Perspective and More

UPCOMING:
Wednesday, December 6, 2023
Noon EST to 1:30 PM EST

CLICK HERE TO REGISTER

Dr. Greg Yanik of the University of Michigan Health Rogel Cancer Center is a hematologist and blood and marrow transplant physician who treats patients with leukemia, lymphoma and other blood and bone marrow diseases. Dr. Yanik will outline the best ways to recognize, prevent, diagnose and treat this chronic rare disease, focusing on lung issues. As well, Lauren Saban, LMSW of Memorial Sloan Kettering Cancer Center will focus on the many psychosocial and emotional needs of all GVHD patients. Additionally, Becky Dame, a two-time transplant survivor of leukemia in Florida who lives with cGVHD is also an Information Specialist for The Leukemia & Lymphoma Society who will share her personal and professional perspective.

This webinar will be facilitated by Jennifer Gillette, our licensed staff social worker. There will be time for questions and answers following the presentation. Slides and the recorded program will be available post event on our website.

Facilitator

Jennifer Gillette, LMSW, nbmtLINK

Sponsors

  • Pharmacyclics and Incyte

Downloadable PDFs
October 12, 2023
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Survivorship: Guidance for Post Transplant Recovery with a Focus on Chronic GVHD, Fatigue and More

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Survivorship: Guidance for Post Transplant Recovery with a Focus on Chronic GVHD, Fatigue and More

Wednesday, November 8, 2023

CLICK HERE TO REGISTER

Dr. Debra L. Friedman, MD, MS and Dr. Carrie L. Kitko, MD, both from the Vanderbilt-Ingram Cancer Center will share their perspective on new advances, cGVHD treatment options, supportive care, the importance of health maintenance and surveillance for late health effects following transplant. These topics are important to understand as you attempt to accept your new normal and advocate for yourself.

Jen Gillette, LMSW and host, will focus on the fatigue all survivors face. Additionally, Terese Roob, an atypical CML survivor from Colorado will share her incredible recent personal experiences and upbeat perspective.

Facilitator

Jennifer Gillette, LMSW, nbmtLINK

Sponsors

  • The Leukemia & Lymphoma Society
    Omeros

Downloadable PDFs
November 10, 2022
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Finding Quality of Life and Support When Living with Chronic Graft Versus Host Disease (cGVHD)

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Finding Quality of Life and Support When Living with Chronic Graft Versus Host Disease (cGVHD)

Wednesday, November 9, 2022

Dr. Stephanie Lee is a Professor at the Fred Hutchinson Cancer Center and the University of Washington, Seattle, WA. At Fred Hutchinson, Dr. Lee is the Associate Director of the Clinical Research Division and the Research Director of the Transplant Long-Term Follow-Up Program and will share her incredible expertise regarding many topics related to quality of life while experiencing cGVHD. Taisel Losada, PsyD, LP of Henry Ford Cancer Institute is a clinical psychologist specializing in the psychological, behavioral, and social factors that impact the cancer population and will cover ways to find emotional support, coping mechanisms and more. Additionally, Peter Gordon is a long-time survivor of AML who had a transplant in 2008. Peter chronicled his transplant and the challenging years afterward in his memoir “Six Years and Counting: Love, Leukemia, and the Long Road Onward” and will share how he is living his best life as he deals with chronic related conditions.

Facilitator

Jennifer Gillette, LMSW, nbmtLINK

Sponsors

  • Pharmacyclics
    Incyte

Downloadable PDFs
September 15, 2022
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Survivorship: Tried and True Tips and Guidance for the Long-Haul Post Transplant

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Survivorship: Tried and True Tips and Guidance for the Long-Haul Post Transplant

Wednesday, October 12, 2022

Abby Ciampa, NP, of the Dana Farber Cancer Institute will share her medical expertise regarding staying healthy in survivorship post-transplant, focusing on side effects such as cGVHD, fatigue and sexual dysfunction, health maintenance and disease surveillance. Regineak Ruffin, LMSW and Info Specialist of The Leukemia & Lymphoma Society will focus on depression, anxiety, thriving as you accept your new normal and advocating for yourself. Additionally, Todd Brown, a ten-year multiple myeloma survivor has had two autologous transplants and will share his incredible personal perspective.

Facilitator

Jennifer Gillette, LMSW, nbmtLINK

Sponsors
  • The Leukemia & Lymphoma Society
  • Sanofi
Downloadable PDFs
January 19, 2022
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Improving the Quality of Life for Patients with GVHD Through Occupational Therapy, Good Nutrition and Psychosocial Strategies

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Improving Quality of Life for Patients with GVHD Through Occupational Therapy, Good Nutrition and Psychosocial Strategies

Thursday, January 27, 2022

Leora Ellen Comis, a senior staff occupational therapist in the Occupational Therapy section of the NIH Clinical Center will lead this webinar with an important focus on OT interventions that can improve the quality of life for GVHD patients. Sarah Henke, Clinical Research Dietitian of the NIH Clinical Center will review key nutrition factors that are important in GVHD and transplant patients. Jennifer Gillette, LMSW, of the nbmtLINK, will host our program and present on the emotional toll of GVHD, advice to better handle it and best tips from patients dealing with GVHD as a part of her presentation. 

Facilitator

Jennifer Gillette, LMSW, nbmtLINK

Sponsors
  • • Incyte Corporation
  • • Pharmacyclics & Janssen
Downloadable PDFs
November 1, 2021
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Chronic Graft Versus Host Disease Webinar: Let’s Learn from the Experts

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Chronic Graft Versus Host Disease Webinar: Let’s Learn from the Experts

Wednesday, October 27, 2021
Connie A. Sizemore, Pharm.D., Lead Clinical Pharmacy Specialist Transplant, Leukemia and Cellular Therapy Program at the Northside Hospital Cancer Institute will lead the discussion covering the increase of allogeneic transplants, the grading of cGVHD, growing risk factors, how the skin, eyes and lungs are affected and treatment options.
 
Latasha McCoy is the Graft Versus Host Disease Nurse for the Northside Hospital Cancer Institute: Blood and Marrow Stem Cell Transplant, Leukemia and Immunotherapy Program, Atlanta Georgia. In 2013, she received a Bachelor of Science in Psychology & Human Services from Clayton State University in Morrow, Georgia. In 2015, she begin working as a Bone Marrow Transplant/Leukemia Resource Coordinator for Northside Hospital. She received her Bachelor of Science in nursing (2019) at Chamberlin University College of Nursing in Atlanta, Georgia.  She completed the BMT nursing residency at the Blood and Marrow Stem Cell Transplant, Leukemia and Immunotherapy at Northside Hospital inpatient unit prior to transferring into the GVHD nurse role. Latasha is primarily responsible the assessment, documentation, staging and grading  of GVHD per the guidelines established by the Center for International Blood and Marrow Transplant Research (CIBMTR) and the NIH Consensus Group. Latasha is an advocate for patients that are experiencing GVHD and works with the multidisciplinary team to ensure that patients receive timely assessments and treatments tailored to manage their GVHD symptoms to optimize their quality of life.
 
Dawn Speckhart, PhD of Northside will provide guidance in coming to terms with emotions regarding a cGVHD diagnosis and how to build a support network and thrive. Latasha McCoy, BSN,RN of Northside will focus on the signs and symptoms of cGVHD and the benefits of a patient diary. Lisa Loutzenhiser, a survivor will share her story and how she combats her cGVHD skin issues as they surface. This webinar will be facilitated by Jennifer Gillette, our licensed staff social worker. There will be time for questions and answers following the presentation.
Presenters
Connie A. Sizemore, Pharm.D., Lead Clinical Pharmacy Specialist Transplant, Leukemia and Cellular Therapy Program at the Northside Hospital Cancer Institute
 
Latasha McCoy is the Graft Versus Host Disease Nurse for the Northside Hospital Cancer Institute: Blood and Marrow Stem Cell Transplant, Leukemia and Immunotherapy Program, Atlanta Georgia
 
Dawn Speckhart, PhD of Northside Hospital Cancer Institute
Facilitator

Jennifer Gillette, LMSW, nbmtLINK

Downloadable PDFs
September 16, 2021
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Webinar Clinical Trial

Webinar – Clinical Trials Explained and Examined: Why It’s Important to Consider Them

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Webinar Clinical Trial

Thursday, Sept. 23, 2021
12:00 Noon until 1:30 pm EST

Be sure to note the time zones

12 pm (Noon) to 1:30 pm: Eastern Time
11 am to 12:30 pm: Central Time
10 am to 11:30 am: Mountain Time
9 am to 10:30 am: Pacific Time

WEBINAR

Bone Marrow/Stem Cell/Car T-cell Therapy Transplant Related

Clinical Trials Explained and Examined: Why It’s Important to Consider Them

We invite you to participate in a FREE webinar that will help you and your loved ones better understand the complexities and reasons to consider a transplant clinical trial, and what they are all about. Two survivors will share their life-saving stories, sure to inspire.

(Caregivers and the medical community are also invited to join this webinar.)

Dr. Asif Alavi, Assistant Professor, Clinical, Hematology-Oncology, of the Barbara Ann Karmanos Cancer Center will share his professional expertise on clinical trials and why they are so important. Abbey Fueger, BA, BSN, RN is a Clinical Trial Nurse Navigator with the Clinical Trial Support Center of The Leukemia & Lymphoma Society and will help us better navigate clinical trials. This webinar will be facilitated by Jennifer Gillette, our licensed staff social worker. Additionally, Mike Ansley and Ray Gillespie, both survivors, will share their incredible personal life-saving experiences with multiple clinical trials, including trials focused on cGVHD. There will be time for questions and answers following the presentation.

Register Today!

 

Questions? Contact Peggy Burkhard at 248-770-5172 or peggyburkhard@nbmtlink.org

Special thanks to our event sponsor

The Leukemia & Lymphoma Society

and our Esteemed Link Partners