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Bone Marrow/Stem Cell Transplant Frequently Asked Questions
20. Are there any survivorship resources?
There are a growing number of available transplant survivorship resources. As a starting point, go to the National Bone Marrow Transplant Link's website at www.nbmtlink.org where you will find information on survivorship programs as well as publications, such as the Survivorship Guide for Bone Marrow/Stem Cell Transplant, Coping with Late Effects. This booklet includes a listing of many other survivorship resources, in addition to practical advice from 2, 5, 10, and 15+ year survivors. You will also find helpful links to other advocacy organizations.
Detailed guidelines for follow-up care are summarized in two helpful guides from Be the Match and the CIBMTR, A Guide to Protecting Your Health After Transplant, Recommended Tests and Procedures (for Autologous and for Allogeneic patients) and a handout for clinicians entitled Clinician's Quick Reference Guidelines: Transplant Consultation and Post-Transplant Care. The Lance Armstrong Foundation also offers information on improving rehabilitation and managing issues of survivorship. In this booklet you will find a listing of many other helpful resources, but your best source of medical information is your physician and other health care professionals. If you have additional questions that were not addressed in this booklet, please contact the nbmtLINK by phone 800-546-5268 or email firstname.lastname@example.org.
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