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Caregivers' Guide for Bone Marrow/Stem Cell Transplant

Acknowledgements

The National Bone Marrow Transplant Link (nbmtLINK) would like to acknowledge the transplant patients, survivors, caregivers, and health professionals who generously shared their experiences and recommendations, and the other individuals who reviewed and edited sections of this booklet’s earlier edition.

The nbmtLINK would also like to acknowledge the editors, reviewers, and< nbmtLINK staff who helped update this second edition of the Caregivers’ Guide.

Co-editors:
Myra Jacobs, MA
National Bone Marrow Transplant Link

Jean Jones
National Bone Marrow Transplant Link

Advisors/Reviewers:
Muneer H. Abidi, MD
Barbara Ann Karmanos Cancer Institute

Kari Bailey, MBC
National Marrow Donor Program

Michelle Burda, MLS
University of Pittsburgh Medical Center

Sarah Christensen, MA
Mayo Clinic Cancer Center

Jill Dowdy, MLIS
Mayo Clinic Cancer Center

Katy Fasl, MSW
University of Michigan Health System

Heather Sikora James
National Marrow Donor Program

Emily McChesney, MSW, LICSW
National Marrow Donor Program

Tiffany Rowe, MBA
National Bone Marrow Transplant Link

We are also grateful to our dedicated nbmtLINK office volunteers who helped make this booklet possible:
Lori Strager, Chris McClellan, Peg McIvor, and Marilyn Beckham

We gratefully acknowledge the financial support for this Caregivers’ Guide from the following:

Sustaining Partners



American Society for Blood and Marrow Transplantation


The Blood and Marrow Transplant Program at Northside Hospital


Children's Hospital of Michigan


City of Hope Cancer Center


Community Cancer Care Specialists


Dana-Farber/Brigham and Women's Cancer Center


Fred Hutchinson Cancer Research Center/Seattle Cancer Care Alliance


Henry Ford Macomb Hospitals


Henry Ford Transplant Institute


J.P. McCarthy Foundation


Karmanos Cancer Center


Memorial Sloan-Kettering Cancer Center


National Marrow Donor Program


OHSU Center for Hematologic Malignancies


University of Michigan Comprehensive Cancer Center


The University of Texas M.D. Anderson Cancer Center

Supporting Partners



Gift of Life Bone Marrow Foundation


The Leukemia & Lymphoma Society


Siteman Cancer Center at Barnes Jewish Hospital andWashington University School of Medicine


UPMC Cancer Centers/Stem Cell Transplant Program

 

Collaborating Partners



Aplastic Anemia & MDS International Foundation
Gilda's Club Worldwide
The Nebrasks Medical Center
Rosalynn Carter Institute
Rocky Mountain Blood and Marrow Transplant Program

Back to Caregivers' Guide Main page


Table of Contents

Acknowledgements

Foreword

Why a Special Booklet for Caregivers?

My Gift to Mom for Her Second Birthday: An Adult Daughter's Perspective

Tackling the Challenge: A Husband's Perspective

Cancer Etiquette: A Survivor's Perspective on Effective Communication

Top Tips for Parent Caregivers: A Mother's Perspective

Another Way to Say I Love You: A Wife's Perspective

Emotional Aspects of Caregiving: An Oncology Social Worker's Perspective

Relying on a Family of Strangers: A Patient's Perspective

Symptom Management for Caregivers: An Oncology Nurse's Perspective

How to Be a Successful Family Caregiver: An Advocate's Perspective

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