News

Each month, the nbmtLINK issues an “Ennouncement” to keep you informed of our latest programs and services.  Please click here to read the current issue or to view past issues.

ExploreBMT™ is an easy-to-search online tool that provides direct access to information about marrow and cord blood transplantation (also known as BMT). From diagnosis through survivorship, patients and their loved ones can use ExploreBMT to browse resources and services from respected patient organizations. Begin your search now at ExploreBMT.org.

Telephone Education and Support for Patients Coping with Chronic Graft Versus Host Disease
March 24, 2011 and October 6, 2011

Chronic Graft versus Host Disease (cGVHD) is one of the most difficult long-term complications following allogeneic transplant. It is associated with “decreased quality of life, impaired functional status, and the continued need for immuno-suppressive medication and difficulties that arise from this need.” (National Institutes of Health).
 
Since 2006, the nbmtLINK has recognized the unique circumstances and issues associated with cGVHD by offering telephone education and support groups for individuals living with the disease. The groups are facilitated by staff from the National Institutes of Health, including Sandra Mitchell, PhD, CRNP, AOCN, and Michael Krumlauf, RN, BSN, and Steven Z. Pavletic, MD, Head, GVH and Autoimmunity Unit.

To Participate in these groups, please contact Tiffany Rowe at nbmtLINK at 800-546-5268 or email tiffanyrowe@nbmtlink.org                

2011 nbmtLINK Annual Update Newsletter Now Online
December, 2011

Please click here to read the latest newsletter from the nbmtLINK.  Highlights include:

• Outstanding National Telephone Conference LINKS Patients, Survivors, and Caregivers Coping with Chronic Graft versus Host Disease
• New Booklet is Coming! Become a Book Sponsor!
• Voices of Hope & Healing Booklet Now Available!!
• Dynamic Outreach to the BMT Community
• Celebrating Second Birthdays — Hope for BMT Survivors
• The New Normal Video Soon Available as DVD!
• Thank you to our LINK Partner Sponsors!

Caregivers’ Guide wins Excellence in Patient Education Award!
October, 2009

The nbmtLINK’s Caregivers’ Guide for Bone Marrow/Stem Cell Transplant, Practical Perspectives won the 2009 Excellence in Patient Education Award from the Cancer Patient Education Network (CPEN).  CPEN previously recognized nbmtLINK for its groundbreaking partnership with the National Institutes of Health through their “Gold Star” award.  This collaboration has resulted in several successful chronic Graft vs. Host Disease Telephone (cGVHD) Education and Support Groups.  If you would like additional information about these award-winning initiatives, please email info@nbmtLINK.org or call 800-546-5268.