News

Each month, the nbmtLINK issues an “Ennouncement” to keep you informed of our latest programs and services.  Please click here to read the current issue or to view past issues.

ExploreBMT™ is an easy-to-search online tool that provides direct access to information about marrow and cord blood transplantation (also known as BMT). From diagnosis through survivorship, patients and their loved ones can use ExploreBMT to browse resources and services from respected patient organizations. Begin your search now at ExploreBMT.org.

Telephone Education and Support for Patients Coping with Chronic Graft Versus Host Disease
Groups are held twice a year in spring and fall, call for dates.

Chronic Graft versus Host Disease (cGVHD) is one of the most difficult long-term complications following allogeneic transplant. It is associated with “decreased quality of life, impaired functional status, and the continued need for immuno-suppressive medication and difficulties that arise from this need.” (National Institutes of Health).
 
Since 2006, the nbmtLINK has recognized the unique circumstances and issues associated with cGVHD by offering telephone education and support groups for individuals living with the disease. The groups are facilitated by staff from the National Institutes of Health, including Sandra Mitchell, PhD, CRNP, AOCN, and Michael Krumlauf, RN, BSN, and Steven Z. Pavletic, MD, Head, GVH and Autoimmunity Unit.

To participate in these groups, please contact Cindy Goldman at 800-546-5268 or email cindygoldman@nbmtlink.org

2012 nbmtLINK Annual Update Newsletter Now Online
November, 2012

Please click here to read the latest newsletter from the nbmtLINK.  Highlights include:

• Bi-Lingual Booklet from nbmtLINK Now Available in Print and Online!
• Peer Support Volunteer Spotlight: Gerlinde Wirzfeld-Olvera
• Patient, Caregiver Support for Chronic Graft versus Host Disease
• Hear Voices of Hope and Healing with New Online Audio
• In-Services Help BMT Medical Staff Better Relate to Patient Needs
• Thank you to our LINK Partner Sponsors!

New Beginnings - Annual Appeal Letter
November 2012

Caregivers’ Guide wins Excellence in Patient Education Award!
October, 2009

The nbmtLINK’s Caregivers’ Guide for Bone Marrow/Stem Cell Transplant, Practical Perspectives won the 2009 Excellence in Patient Education Award from the Cancer Patient Education Network (CPEN).  CPEN previously recognized nbmtLINK for its groundbreaking partnership with the National Institutes of Health through their “Gold Star” award.  This collaboration has resulted in several successful chronic Graft vs. Host Disease Telephone (cGVHD) Education and Support Groups.  If you would like additional information about these award-winning initiatives, please email info@nbmtLINK.org or call 800-546-5268.